Just returned from Super Smith appt with good news.
Marsh has been cleared to return to school next Monday. No gym or recess until June 1 because of the bruising.
It is imperative he has multivitamin with iron to bring his hemocrit back up. The fatigue is likely a result of anemia but because he is stable he can’t have a blood transfusion.
The leg has a palapable hematoma 🤞 that resolves and Marsh’s gait returns to normal.
Bruising on his arm is especially gnarly looking but is slowly healing.
Next visit July 15 at 1 pm provided we can keep Marsh healthy 🥳🤞
So many thanks for all of the good thoughts and prayers and so much love! Sending hugs ❤
Super Smith (Syracuse Cardiologist) Today 💖

Memories 💖

Great Night for a Cruise!


Worsening cough
Marsh had a small pleural effusion one week ago when we left “heck” (to quote our ginger miracle.)
Please send a good thought or prayer that the cough gets better.
Many thanks from the bits and puts ❤❤❤❤❤❤
Happy Thursday

The answer is 14
I finally counted up the number of times Marsh has been cathed.
I remembered 11 without even looking at his medical records. Not bad for an old lady;)
We’ve Got Smiles ❤

Behold the Jack O’ Lantern grin of a boy transforming before our eyes to a young man
❤❤❤❤❤❤
Follow Up With Pediatrician
Marsh had his follow up with Dr Matott (pediatrician) today.
It was so-so.
His liver is enlarged. He is really limping. The left leg really hurts. The “oozing” (bleeding) finally settled down. The bruising has worsen. Vitals are ok.
In good news, he is perking up…and more mobile yesterday and today than Friday and Saturday.
Please continue to hold Marsh in your thoughts, prayers, and hearts ❤
Improving some…Sunshine helps

