Fetching

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Dr Friedman and Dr Luis took the time to speak with us  (everybody needs a break from exercising their superheroic powers, right) this a.m. to discuss the findings from the Cath.

And at this point, though some findings were pretty certain, a lot is still unknown.

We don’t have a plan until Dr Friedman is finished fetching information from other members of Marshall’s team.

So we wait.  And we watch him. And we (learned the hard way) to stay close (you will have to wait for the Morphine Madness story in his book).

Our little man is eating, peeing, pooping, sleeping, and doing all that he should mostly.  He hasn’t yet smiled and he is quite groggy but given all he went through yesterday and the past week, we are fine just feeding, cuddling, rocking, and caring for him.  He will shoot us a smile when he wants, as he does everything else ;-).

As always we are thankful for every well wish (please keep them coming) and minute we have with him.

Cath Circus

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Sooooo Marshall’s cath was full of all kinds of things to make it more interesting. 

Highlights (?) included our late arrival (oops on me for savoring more time with Marshall), difficulties in even placing the cath, a wait for the book incident I will call “A Fellow Blood Spray,” a question of whether to place a stent (they didn’t THANK GOD), a series of pokes to attempt to place an iv line (hello pincushion), a very minor head laceration which could end a really important study (hope with me that the Board doesn’t), an added boost of sedation to “calm” our redheaded spitfire down,  a longer than anyone liked intubation, whatever I am forgetting, and one HECK of a team.

Once the circus ended, Marshall went to the ICU for observation.

Marshall ate (a bottle of the good stuff).
Marshall peed (as he should).
Marshal is sleeping soundly (as I should be too…)

We meet with Dr Friedman first thing tomorrow to discuss plans.

In the meantime,  please send your thanks to the folks involved into today’s Cath Circus. 

And while you are sending things, send some really big, really healthy, really hope-filled thoughts to our little man …please, please, please if you have any to spare…

Cath

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(Sidenote: there is a song of the same name as the title of this post.  I can’t stop “hearing it” in my mind.)

Marshall was “loopsie” as his oldest brother calls it when we left him with the catheterization team minutes ago.

That was a tough (ridiculous understatement) moment.

He is in good hands for the next few hours.

And in the meantime, we are hoping beyond hope all goes well…

 

Tests & tests

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The familiarity of being back at Children’s is incredibly humbling.

Remembering all of the experiences we have had here is so bittersweet.

But we got Marshall so it was more than worth it 🙂

We arrived a few minutes past 8 a.m. (thank you, Boston traffic! )

So far Marshall has had his chest x ray, blood work, vitals, & echo.

We consulted with Dr P for the catheterization since Dr. Friedman will be away tomorrow.

Marshall has tentatively placed first up for the cath in the a.m….but as with all things, that could change.

After the catheterization tomorrow, Marshall will likely stay for observation. 

Then we make a plan with Dr. Friedman Thursday.

Please, please, please keep our littlest man in your thoughts ♡

Sunshine Committee

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The wild boys had a very, very sad goodbye this a.m.

I can’t offer enough thanks to the people who attempted to make this a.m. easier on them.

My oldest son and I hugged tight and he said “I want to cry but won’t.” 

I welled up.

My second oldest son kept his head low and his feelings wrapped tight.  His silent hug and kiss said more than words could. 

A tear slid.

And my ginger boy melted down.  He doesn’t want us to leave, he wants to go too, and just thinking about it makes me cry all over again.

I would like to think Mrs. Jessup, Michael’s cheerful mood,  the walk I took Marshall on, and the big wild boys’ dad helped. 

My mind knows they did.

But my heart just won’t believe it…