For now

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With Marshall not feeling well, I spend much of my time dancing and rocking and bouncing to keep him comfortable.  
So I am generally too exhausted to write. 
Please forgive me.

For now the team is trying meds then bigger meds if these don’t work. More tests on Monday. His case will be presented at two conferences Tuesday. Maybe we will have a plan by Wednesday…but we have a ginger wild card calling all of the shots.  In fact, as I was sitting in a meet in with Michael & doctors discussing Marshall,  I reminded them all who is ultimately in charge here ;-). 

And since he is feeling slightly better, they can expect his mischief to return soon!

The good news is we still have options.
As thankful as I am for this, none of our options are as great as the nearly five months we have spent with our littlest miracle at home with his brothers.

All things in time, right?

Things are not great

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But they could be much worse.

Marshall is not feeling well.  But he seems to be feeling a little better than he did. 

So, I will take that for a win for now. 

The Boston team is trying new meds and watching him closely to better determine what is going on with him.  They are also doing another abdominal ultrasound and echo Monday.  Tuesday they will present his case at their weekly conferences.

Then we will have enough input to better know what the next step is.

So it looks as though we will be here a while…which is good and bad.

I miss all of my boys so very much.  I even miss the littlest one sitting next to me since all he has done lately is cry, sleep, eat, & fill diapers. 

He only smiles around once per day instead of one million because he feels so lousy.  But those smiles mean so much to us so we will take ’em ;-).

Please, please, please keep Marshall in your thoughts.  He is going through (or already been through) more than most go through in an entire lifetime.