Post op virtual visit with Dr. Rhodes went well. She is pleased with how the sites are healing.

And Dr Super Smith’s office already called.

Potassium is too low. Plan is to increase aldactone by another 25 mg (an entire pill…dose has quadrupled since 10/23) for 3 days. Dr Smith also encourages Marsh to drink oj, eat oranges, and eat bananas as well.

Iron (Red blood cell count) is low (suggestive of anemia to me which is not surprising considering how much blood Marsh lost last week …plus Marsh’s hematocrit was too low in Boston) so we need to encourage iron rich foods (all he would eat is nuggets not worth the time) and a multivitamin…

Thank you, Christine!

“Marsh is very, very medically fragile” Direct quote from Dr. Super Smith

Marsh was a champ through the exam and labs. Dr Smith went to the blood draw with us (how is that for good medicine!)

Dr. Smith agreed to let join in on the Halloween Parade at school weather permitting and ample precautions in place…

Dr. Smith and all also made arrangements for oxygen to travel with Marsh everywhere we go because Marsh doesn’t seem to rebound as strongly anymore.

Xray showed tiny plueral effusion on the right. No changes with meds at this time. Coincidentally, Boston called to schedule the next cath in mid-January while we were waiting for the xray.

It is unlikely Marsh will be able return to school for at least another 4 weeks…or longer.

Return to Super Smith in 10 days…

Please send a good thought or prayer Marsh’s way today💕💖❤

Granted, I am still exhausted from three weeks worth of Marsh’s health events but…

It took me 15 minutes short of TWO hours to prepare Marsh’s meds this morning.

And I have had 2,119 days of experience (minus hospitalizations when someone else does the job.)

396 days ago Marsh was on a mere SIX doses of medication.

Today he is on TWENTY SIX plus a topical cream three times per day.

I am not so great at math but that adds up to 29 doses…

Silly face engaged✔

Recovering with Daisy✔

Woke up hungry✔

Meds and six nuggets in for breakfast✔

The terror of the past three weeks with all Marsh has been through busied me so much I could not properly express my gratitude.

The support, kindness, good thoughts, huge prayers, skill, and actions of many brought Marsh and me to right now: cuddling at H-O-M-E with Daisy at our feet.

Thank you to the nurses and staff at Upstate.

Thank you Super Smith, Dr. Egan, and the team at Pedatric Cardiology.

Thank you Dr. Friedman, Dr. Kane, Dr. Baird, and the armies of nurses and staff at Boston Children’s.

Thank you to the best big brothers Marsh could ask for.

Thank you to Dan for shouldering a corner of this wild life with us.

Thank you to my family, my grandparents, my grandma, and Marsh’s grandparents for traveling for visits, hand holding, help, and hugs.

Thank you to my sweet step sisters, their partners, and their families for so much I can’t even express at this time.

Thank you to friends like family and the world’s best neighbors who helped to make all of this easier.

Thank you to Marsh’s dad and his tribe for covering the times I could not be there with Marsh.

Thank you to the armies of people who reached out to send good thoughts, prayers, cards, messages, texts, blog shares, and financial help.

Thank you to the S-E team for such kindness.

Thank you to the Sherburne Fire Department and Auxillary for leaning in with heroic force.

Thank you to Dr. Jim for his wisdom, guidance, ears, and reassurance.

Thank you to the armies of people we have met along the roller coaster of the past six and one quarter years since that prenatal diagnosis.

And, most of all, thank you Marshall for being the strongest and most loving person most of us have ever met❤❤❤❤❤❤