







His favorite holiday and only second time in a store like this. He was so happy❤

This will forever be my favorite view…


I felt a tickle and voila! She had landed on me❤

It isn’t Prouty but it is so nice to be outside.
Good news: Marsh smiled 4x last p.m.! Though his o2 was wobbly last night before sleep, it has settled today in his sweet spot in the 80s.
He woke up comfortably after a good sleep with a big pee (t.m.i. but a good signal diuretic is working!).
He already ate an entire bag of salt & vinegar chips this a.m…more than he has had to eat in over a week!
Plan is to wash his hair and hope/pray (with everything we have got) that gets his wish fulfilled to “get out of here”…please lean in (more if you can) with big thoughts & huge prayers.
Hugs, love, and so many thanks ❤
Learn from my experience: if you cry with a droplet mask on, you chap your face…
Dr. Friedman stopped by before he left for the weekend. The xray yesterday afternoon looked as good as the night after the cath.
The ultrasound, however, showed both lungs have effusions or collections of blood – and there is no way to know other than repeating images.
Every time the nurse came into his room yesterday he cried and declared “I want to leave” and “I want to go home.”
Then he cried in my arms.
I hadn’t ever seen Marsh’s spirits so low – worsened by the previous night’s promises of going home yesterday – and I really never want to see him so sad ever again.
💔
Xray complete.
Ultrasound complete.
Blood ordered.
Please, please, please, please send big prayers and huge healthy thoughts❤