Good news: Marsh smiled 4x last p.m.! Though his o2 was wobbly last night before sleep, it has settled today in his sweet spot in the 80s.

He woke up comfortably after a good sleep with a big pee (t.m.i. but a good signal diuretic is working!).

He already ate an entire bag of salt & vinegar chips this a.m…more than he has had to eat in over a week!

Plan is to wash his hair and hope/pray (with everything we have got) that gets his wish fulfilled to “get out of here”…please lean in (more if you can) with big thoughts & huge prayers.

Hugs, love, and so many thanks ❤

Learn from my experience: if you cry with a droplet mask on, you chap your face…

Dr. Friedman stopped by before he left for the weekend. The xray yesterday afternoon looked as good as the night after the cath.

The ultrasound, however, showed both lungs have effusions or collections of blood – and there is no way to know other than repeating images.

Every time the nurse came into his room yesterday he cried and declared “I want to leave” and “I want to go home.”

Then he cried in my arms.

I hadn’t ever seen Marsh’s spirits so low – worsened by the previous night’s promises of going home yesterday – and I really never want to see him so sad ever again.

💔

Xray complete.
Ultrasound complete.

Blood ordered.

Please, please, please, please send big prayers and huge healthy thoughts❤

We aren’t leaving. Marsh’s hemacrit is too low and there is a problem they found in the xray with the left lung.

So he is going to 8 East.

I don’t have the heart to tell him we can’t go home.

Please, please, please send good thoughts and big prayers ❤

Dr Friedman was just here. The pulmonary vein stenosis has progressed significantly. They are hopeful the cath will alleviate some of the resulting problems and progression.

And they are changing the diuretic to hopefully get a better response.

Our meeting after the cath with Dr. Esch could have been worse. The left lower pulmonary vein is gone. Left upper pulmonary vein has been stented. The left lower could grow back if the blood flow to the upper improves thus the stent placement.

The Glenn on the left completely rerouted and formed collaterals.

Pressure in Glenns was an astronomical 30. They brought it down to 22.

He has AVMS growing from his liver to heart.

And collaterals on the aorta, lungs, etc.

Dr. Esch took care of the collaterals he could.

Friedman stopped by but hadn’t talked to Dr. Esch yet. He will be in later or tomorrow before we come home.

Please pray for an uneventful evening and tickets out of here. Marsh declared it “the worst place ever” before the cath.

And there truly is no place like home.

Hugs. Love. Thank you for the prayers. Please keep them coming.

Will update more later

They are getting ready to remove the catheters now. Will be a half hour or so before we hear more.