Marshall had a panel of allergy labs drawn last week. The results are in. The good news is he isn’t allergic to dogs. The not so good news is he seems to be allergic to the big allergens: peanuts, milk, eggs, casein, and other things I can’t pronounce or spell. I won’t feed him wheat […]
I don’t even know where to begin in terms of offering my thanks for everything and everyone who helped my family and our ginger miracle this past year. Especially Marshall’s Boston and hometown teams. And everyone in between. Our. Baby. Is. One. 🙂 And his party was fun. Though we missed some we wished could […]
This is how Marshall’s First Halloween began: In the excited anticipation of today, Marshall’s big brothers accidentally woke him. As Marshall was waking up (he is a slow starter like me) and nibbling on his cereal, Isaac shared his mask by placing it on Marshall’s head. Of course, Marshall successfully (and quickly) removed the mask […]
Wahhhhooooooooo 🙂 🙂 🙂 🙂
Though I have known Michael a long, long time, today I have to go back to the one moment when he was the happiest I have ever, ever seen him (so far anyway.) And just remember. (Such big hands and such a tiny baby!!) Soooo if you see Michael today, wish him a happy birthday! […]
This (rough) morning, Marshall has his second cardiologist appointment since we have been back home! So far it has shaped up to be a rough start. One case of strep, one exhausted ginger boy, and one screaming ginger baby have me entirely worried for reasons I don’t have time to explain. Please send some good […]
Four weeks ago today Marshall went into the OR with Dr Baird, Dr Friedman, and the Boston team. Little did we know when we did that (still makes my heart just ache and eyes tear to think about) 2:00 p.m. dread-filled pass off of a grumpy, hungry, semi-sedated, yet still yelling spitfire just how much […]
Double bunny ears 😉 My heart is so, so, so happy to have these boys together!
A group of incredible people joined forces to host a benefit to support Marshall “The Miracle” Sepello. I don’t even know where to begin to thank them. Every kindness means the world to all of us on this rollercoaster ride as we help Marshall wage his war against congenital heart disease and heterotaxy. I would […]
Marshall is slowly being weaned from the sedation. I stepped out for a (really late) brunch and came back to Marshall in what the nurses call a “Welcome sleeve.” Seems he was up to his mischievous ways in the 1/2 hour I was out and was pulling at his vent and n.g. tube. I believe […]
themiracleofmarshall 