Four weeks ago today Marshall went into the OR with Dr Baird, Dr Friedman, and the Boston team. Little did we know when we did that (still makes my heart just ache and eyes tear to think about) 2:00 p.m. dread-filled pass off of a grumpy, hungry, semi-sedated, yet still yelling spitfire just how much […]
Double bunny ears 😉 My heart is so, so, so happy to have these boys together!
A group of incredible people joined forces to host a benefit to support Marshall “The Miracle” Sepello. I don’t even know where to begin to thank them. Every kindness means the world to all of us on this rollercoaster ride as we help Marshall wage his war against congenital heart disease and heterotaxy. I would […]
Marshall is slowly being weaned from the sedation. I stepped out for a (really late) brunch and came back to Marshall in what the nurses call a “Welcome sleeve.” Seems he was up to his mischievous ways in the 1/2 hour I was out and was pulling at his vent and n.g. tube. I believe […]
I passed my baby off eight hours ago. I tried not to cry. The only experience I can equate the.feeling of passing Marshall off to OR Nurse J, an anesthesiologist, and a doc is it is a step above holding my dog at the vet on her last day with me. My. God. This. Is. […]
Marshall’s cardiologist appointment with Dr. S went well. “I love you. You look great.” (direct quote.) That kind of medicine does the heart good. But it Dr S’ other words that are still echoing in my head. I would give nearly anything for Marshall to be well enough to postpone leaving his brothers and heading […]
Tomorrow marks the one year anniversary of when we found out Marshall was a boy. And when we found out about Marshall’s extraordinary heart. Just remembering that day brings me to tears. To say this week has been easy would be a total, absolute lie. To say the weeks since we were freed from “Hotel […]
Being home with all four of my boys yields such tremendous joy & extreme happiness paired with tremendous sadness. I live moment to moment and don’t have a lot of peace in this exhausting chaos. And the boys and I are constantly wondering when I have to leave with Marshall again. Marshall’s bloodwork from Monday […]
Look who is surprising his big brothers in the morning! Shhhh….lets make this the best kept internet “secret” of all time 😉
themiracleofmarshall 