Marsh had a good night. He slept and drank some lemonade. Now to get him to go #2 and eat…. Rumor has it he is going to 8 East (the regular cardiac unit today!) Please keep those good thoughts and prayers coming. ❤

And he sleeps…22 hours later. Marsh had a heck of a time coming down off of the meds (borderline withdrawal symptoms.) This is the first time he has slept since extubation yesterday. Last night was a mess Michael and (especially) I will not ever forget. Hopefully Marsh will not remember. The chest tubes irritated everything […]

Marsh had a few bites of solid food and a couple of MLS of his milk. He has been able to stand on shakey legs and walk with assistance. Please send good thoughts and/or pray ferociously. He is improving but his heart is in rough shape and every bit helps. So much love and so […]

Marsh started vomiting at some point after 9 PM last night. Marsh is really really lousy and throwing up because of everything. And throwing up everything. And has only peed once. Please send some prayers this passes quickly. I have been awake 25 hours and 12 minutes. I am so thankful to hold him and […]

We have a very tired little boy who has been through hell but no more vent! Thank you so much for the prayers. Lets keep them coming to get his belly feeling better and to get his heart straightened up enough to get back home where we belong please. Sooooo many thanks, tons of hugs […]

It is official: they want to extubate. Please send positivity, strength, big prayers, massively good thoughts, and lots of healing energies that it goes well. Words can not say how much we want to hold our little miracle. Hugs, love, and thanks❤