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themiracleofmarshall

one little heartbeat at a time

Category Archives: Great Minds Think Alike

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Send more prayers

October 6, 2018 by mamawillloveyouforever

This is Marsh’s 8 South neighbor. https://www.google.com/amp/s/www.goodhousekeeping.com/health/amp22775385/kate-bowen-pediatric-heart-attack I overheard her story while we were in the cafeteria as her mama (and dad) were talking with a companion. Because of germ risk and such, I can not reach out to them but we can offer our support. So many thanks❤

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Game day back home! Get the win, gents❤

October 6, 2018 by mamawillloveyouforever
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CICU Day 8, post a.m. rounds

October 6, 2018 by mamawillloveyouforever

They just rounded. There are no beds in 8 east so they are going to do things here in 8 south as they would on 8 east. Vitals every 4 hours. Reducing lasix to 2x per day. Same meds as home (with 2 extra slidenifil and the lasix) Tentative discharge tomorrow provided there are no […]

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It is a special day in 8 South though we would love to be celebrating in the mountains! ❤🎉🎊🎁🎈💖

October 6, 2018 by mamawillloveyouforever
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CICU Day 6 post rounds

October 5, 2018 by mamawillloveyouforever

Marsh is on all oral meds and the only change they have made is they want to weigh him daily. Send good thoughts and healthy prayers please. Hugs and love❤

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CICU Day 6 pre-pm rounds

October 5, 2018 by mamawillloveyouforever

Marsh took a third walk today and fell asleep after the first two. He threw up again while I was out catching up laundry and showering. I ran back to the hospital (beautiful day for a jog!) as Marsh was having his echo. A few hours later, a Fellow (doc) delivered the echo results. Marsh’s […]

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Post walk cuddles ❤❤❤❤❤❤

October 5, 2018 by mamawillloveyouforever
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CICU Day 7 post rounds

October 5, 2018 by mamawillloveyouforever

They just rounded. Marsh is definitely going to 8 east. They are switching iv meds to taken by mouth. They are ordering some gi meds to get him to go #2. They have plans to remove an access line in his neck provided surgical team agrees. And they mentioned an echo so that maybe just […]

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Total cuteness!

October 5, 2018 by mamawillloveyouforever
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Strolling Again

October 5, 2018 by mamawillloveyouforever
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I want to tell the world how much I love you because I don’t know how much time we’ll have heart to heart

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Think of the number of lives we could help if we could.

When I don't know what to do, I defer to people with greater knowledge, greater wisdom, greater experience, and greater perspective.
And Marshall's health is no exception.
The difference between life and death for hundreds of babies, like Marshall, born with special hearts, comes down to a lot of things. But in the process of securing the help Marshall needed, I found it often came down to knowledge, money, resources, and access to information.
We're working as hard as we can to gather all of the above. And sometimes that just isn't enough.
You may check out the fundraising website some truly incredible people set up for our family by going here
Any donations we receive will be designated solely for the purpose of ensuring Marshall gets the best care we can offer during our time with him. Though I hope that time is long, there are no guarantees. But one thing is certain: every dollar we raise (beyond covering Marshall's medical and travel expenses) will be used to establish a foundation dedicated to helping other families as they manage their child's congenital heart disease and congenital heart defects.
An anonymous donor once offered to match every dollar in donations up to $10,000. For his or her support, help, and prayers there are not words enough to ever repay our debt.
Think of the number of lives we could help if we could.
Please help if you can.

With Supreme Gratitude, Our Family Offers Our Thanks to:

Dr K Nurse T Sonographer E Dr. E Dr. S Sonographer C Dr  No Dr  N Dr Friedman The Entire Staff at Boston Children's Hospital Shay Sonographer B NBT Bank Sea Waves Technology Stomping Grounds Art: Books: Gifts Kim at my former insurance The great folks at Blue Cross Blue Shield The Wild Boys Penny Erin Bob and Linda The Baker Family Tammy Roberta Cindy Martha Donna Jim, Rob, & Dan Cassie Martha Rob Patty Pam Sarah Terri The Day Family The O'Connors The Bennett Family Ruth James, Beth, & Lily Micah Jenn Julie Paul Fay Erica Jesi Susan B Sharon Kathy Karen Carin Monica Nichelle Sue M Mary Barbara The Ellis Family The Le Family The Sabino Family Mang Insurance Ryan Mangrum The Class of '97 Laura Rachel Eric Wcom Wendy CompassionNet Alicia Jan Gilligan's Frontier Dollar General Big M Service Pharmacy

Everyone who shared Marshall's links

Everyone who read Marshall's blogs

..and many more!

“It is not the critic who counts; not the man who points out how the strong man stumbles, or where the doer of deeds could have done them better. The credit belongs to the man who is actually in the arena, whose face is marred by dust and sweat and blood; who strives valiantly; who errs, who comes short again and again, because there is no effort without error and shortcoming; but who does actually strive to do the deeds; who knows great enthusiasms, the great devotions; who spends himself in a worthy cause; who at the best knows in the end the triumph of high achievement, and who at the worst, if he fails, at least fails while daring greatly, so that his place shall never be with those cold and timid souls who neither know victory nor defeat.” Theodore Roosevelt

“I believe in miracles, how ’bout you?”

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