PASSED! And many thanks to the Le family for the great seat, gifts, and food!!

Dr. Friedman ordered an echocardiogram for tomorrow or the day as after. If Marshall can gain a little weight, we are OUTTA HERRREEEEEE! Friedman expects no later than FRIDAY!!

Life keeps putting people in our lives to remind us of where we could be and to take nothing for granted. Our roommate, beautiful, blond Baby K is a 14 month old. She and her parents have been here for 7.5 weeks.  She is very, very, very sick. She can’t even sit up. From what […]

FINALLY all four of the wild boys are under the same roof!!!!!!  MANY MANY MANY THANKS TO GRANDMA PENNY & ALL OF THE FOLKS WHO HELPED MAKE THIS MOMENT HAPPEN!!!!

I slept in a bed for the first time in 16 days. Michael stayed with our little miracle.  Yes I freaked out. A lot. And when michael didnt reply to 3 texts, i called panicking. Everything was ok. There’s something restorative about getting away from hospital traffic, air, beeps, bells, & whistles. When I awoke […]

Shortly after my last post, I tried to get some shut eye. And as every baby does, Marshall fussed shortly after my head hit the pillow. His dad was on duty and scooped him up. Nothing comforted him.  So his fuss turned to wails. The wails turned to cries. Then things got crazy. I got […]

Soooooo much my shoulder hurts. And 3 more wild boys will be here in 48 hours. Today was a good day.

Dr Luis was here when we arrived this a.m.  Marshall’s progress has been great.  Though his mood isn’t so much. He is just a grumbling grumbler today. Considering all he has been through in the past week, (I CAN’T BELIEVE IT HAS BEEN A WEEK SINCE HIS SURGERY!!) this little man can be as grumpy […]

It took three adults but Marshall took in 15 ml by mouth tonight!! Annnnd that is 2 ml more than his hourly feeds by NG tube last night! His nurse (a sweet, charismatic young woman) told us to get our rest because from tomorrow on, we are on full time duty as parents!