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themiracleofmarshall

one little heartbeat at a time

Category Archives: Great Minds Think Alike

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3.19 kg = 7.03275 lbs

February 12, 2014 by mamawillloveyouforever

All I have for an update today is the above numbers. Yes, folks, MARSHALL NOW WEIGHS OVER SEVEN POUNDS!!!! And he is still trying to sort out his days from his nights.   So this mama is…zzzzzzz….

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First Saturday

February 8, 2014 by mamawillloveyouforever

While sipping coffee and watching the wild boys be, I realized that this is this first Saturday since Marshall was born that we have all been home together (with the exception of a name calling, pacifier throwing, newly promoted, sleepy headed grump.) This family of six thing is pretty powerful stuff even if I am […]

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Fundraiser Update

February 5, 2014 by mamawillloveyouforever

I set the bar high for what I hope will become the Marshall Sepello Foundation with a goal amount of $30,000. I haven’t yet worked out the details.  At this point, I’m leaning toward a relief fund for families as they deal with the medical & travel costs, scholarship program, and some sort of way […]

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“How do I describe what he is going through?”

February 5, 2014 by mamawillloveyouforever

Marshall’s great aunt Cindy spent the afternoon with us yesterday. What a joy just to sit on the couch and chat with her just the three of us (Marshall, her, & me).  It has been YEARS since we have been able to do that without the interruption (and audience) of the wild boys. As I […]

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Bills and Boogers

February 3, 2014 by mamawillloveyouforever

A friend of mine recently messaged me on Facebook to check in and see how things with the little man are. My response: “My life was crazy before. Now it is just insane!!!!” At this point, the medical bills have started rolling in and we are buried in boogers. All of the big wild boys […]

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January 29, 2014 by mamawillloveyouforever
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The long and windy road

January 29, 2014 by mamawillloveyouforever

Dr. Friedman stopped this a.m. to give us his parting for now words and plans for the future. His reminder that the odds are pretty much highly stacked against us (50-60%) were not what we needed to hear.  So I just didn’t listen 😉 . Marshall is going to need a more in depth round […]

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HULK SMMMMAAAAASSSHHHH

January 29, 2014 by mamawillloveyouforever

They upped the calories in Marshall’s milk. And he hates it. So he “hulked” all night.. there is no other way to describe it.  When the little man issn’t asleep or eating, he is in a “hulk SMASSSHHHHHHH” mood.  And when Marshall gets angry, he gets really really angry. When he is mad enough, he […]

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Home Practice

January 28, 2014 by mamawillloveyouforever

Tonight is a big night. We are in charge of all of Marshall’s care. The only help we get from the nurses is they bring the bottles for him (since they keep the infant nourishment room locked.) We monitor & record his stats, feeds, mood, diapers, and all of the things they need to keep […]

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Marshall can SMILE!!

January 28, 2014 by mamawillloveyouforever

He is only 19 days old but he can smile.  I have the video to prove it (it just needs an edit.) 

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Think of the number of lives we could help if we could.

When I don't know what to do, I defer to people with greater knowledge, greater wisdom, greater experience, and greater perspective.
And Marshall's health is no exception.
The difference between life and death for hundreds of babies, like Marshall, born with special hearts, comes down to a lot of things. But in the process of securing the help Marshall needed, I found it often came down to knowledge, money, resources, and access to information.
We're working as hard as we can to gather all of the above. And sometimes that just isn't enough.
You may check out the fundraising website some truly incredible people set up for our family by going here
Any donations we receive will be designated solely for the purpose of ensuring Marshall gets the best care we can offer during our time with him. Though I hope that time is long, there are no guarantees. But one thing is certain: every dollar we raise (beyond covering Marshall's medical and travel expenses) will be used to establish a foundation dedicated to helping other families as they manage their child's congenital heart disease and congenital heart defects.
An anonymous donor once offered to match every dollar in donations up to $10,000. For his or her support, help, and prayers there are not words enough to ever repay our debt.
Think of the number of lives we could help if we could.
Please help if you can.

With Supreme Gratitude, Our Family Offers Our Thanks to:

Dr K Nurse T Sonographer E Dr. E Dr. S Sonographer C Dr  No Dr  N Dr Friedman The Entire Staff at Boston Children's Hospital Shay Sonographer B NBT Bank Sea Waves Technology Stomping Grounds Art: Books: Gifts Kim at my former insurance The great folks at Blue Cross Blue Shield The Wild Boys Penny Erin Bob and Linda The Baker Family Tammy Roberta Cindy Martha Donna Jim, Rob, & Dan Cassie Martha Rob Patty Pam Sarah Terri The Day Family The O'Connors The Bennett Family Ruth James, Beth, & Lily Micah Jenn Julie Paul Fay Erica Jesi Susan B Sharon Kathy Karen Carin Monica Nichelle Sue M Mary Barbara The Ellis Family The Le Family The Sabino Family Mang Insurance Ryan Mangrum The Class of '97 Laura Rachel Eric Wcom Wendy CompassionNet Alicia Jan Gilligan's Frontier Dollar General Big M Service Pharmacy

Everyone who shared Marshall's links

Everyone who read Marshall's blogs

..and many more!

“It is not the critic who counts; not the man who points out how the strong man stumbles, or where the doer of deeds could have done them better. The credit belongs to the man who is actually in the arena, whose face is marred by dust and sweat and blood; who strives valiantly; who errs, who comes short again and again, because there is no effort without error and shortcoming; but who does actually strive to do the deeds; who knows great enthusiasms, the great devotions; who spends himself in a worthy cause; who at the best knows in the end the triumph of high achievement, and who at the worst, if he fails, at least fails while daring greatly, so that his place shall never be with those cold and timid souls who neither know victory nor defeat.” Theodore Roosevelt

“I believe in miracles, how ’bout you?”

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