We are at the cardiologist in Syracuse. It is such relief to be here with Marshall when I wasn’t sure I would ever see Sonographer C and Dr S again. So thankful to be here. So far yesterday’s bloodwork came back pretty wacky with some numbers. So here is the quick version of a long […]
And made his first visit to Chuck E. Cheese! Plus the big wild boys had an absolute BLAST! Happy birthday to Jamie! And many thanks to the O’Connor’s for the invite! What.a.busy.end.to.a.busy.weekend. Our first weekend home included A (great) surprise visit from my grandparents, swimming, an impromptu dinner with Grandma Penny, Uncle Jim, Aunt Donna, […]
Marshall is smiling, happily babbling, and successfully walloping the virus! Sooo thankful for that and every moment I spend with this little man. Now to get all four of my little men together…holy hannah I miss my big boys…
The only way it could be better is if my big wild boys were here too… My.goodness.I.miss.them.
When we were expecting Marshall, no one properly warned nor prepared us for this experience. Granted they could not predict how things would be. Nor could they offer any believable wisdom. It is one of those things you just have to go through. So with each new nurse we meet, I offer my thanks. I […]
Well it is official Docs had meeting and sent social worker in to apologize: they are dropping the milrinone tonight. He will likely be off of it tomorrow or the next day. So your thoughts and prayers would be much, much appreciated (not that we don’t always but maybe more so than ever) because much […]
Marshall was babbling and playing yesterday morning. And he let an accidental “Dada!” slip…this means it is only a matter of time before he intentionally says it 🙂
To be a little less mundane than usual. But around here boring is better. Some of Marshall’s labs came back. His white blood cell count is high. And he has a low grade fever now. He is smiling still. So it could be worse. Hopefully this won’t change the cath plan for tomorrow… Please send […]
Dr Baird ANNND Dr Friedman were here together this morning. That was a powerful moment. Especially when Dr Baird tickled Marshall’s feet. I lost count of how many times I have watched members of the world’s best team engage with this adorable life they have thankfully extended with life saving measures. When I get […]
By the baby in the mirror 😉
