My apologies for not updating sooner. My phone is uncooperative and my Internet connection is wacky. Here’s what I know: Marshall is “stable” and “looks good.” That’s just the team’s opinion. He is my baby. He has been through hell and it shows. The good news is things are progressing slowly but surely. And very […]
We Just talked with Dr Baird Surgery was a success. We now need to wait and see how the recovery goes. If he makes it through the next 8 hours, his chances will be very good. As for technical details, Dr Baird repaired the total anomalous pulmonary venous return and attached them where they belong […]
Marshall will have his second surgery – a bilateral bidirectional cavopulmonary Glenn procedure – tomorrow. Our baby is having a high risk open heart surgery on his 8 month birthday…
A late start isn’t shaping up for a stress free morning… Oopsie. We are off to see Dr. S for a pre-Boston check up. Please keep Marshall in your thoughts!
SOOOOOO. INCREDIBLY. THANKFUL. !!!
In silent, still wonder (sorry for the blurry shot!)
Marshall’s cardiologist appointment went well. Echo was good. His O2 Saturations are a little low. Before we went to Syracuse, we had a disasterous attempt at a blood draw. Sooo we are waiting ’til next week for that. Supplementing feeds somehow seems to be necessary as Marshall’s gains are not substantial. The team here is […]
It was around one year ago that Marshall began to let everyone know precisely what he was made of. The size of his first kicks should have been a clear warning to us all ;-). I am absolutely happy he is here. He is a pure delight. A worrisome and exhausting delight… but such an […]
Marshall weighed in at 6.47 kg – 14 pounds, 4 ounces – this a.m.!! This means he has toppled his previous heaviest weight. And best of all, HE IS GROWING AGAIN!!! 🙂 Now lets hope his shunt holds… each ounce from here forward could compromise that 3 mm shunt that his pulmonary blood flow depends […]
And has been holding his mouth and tongue in all kinds of new ways trying to alleviate the teething boo boos. As the happiest baby I have ever known, he hasn’t at all been terribly grumpy thankfully. Just lots of night wakefulness, weird lip smacking and (oh no) biting… Maybe this tooth was the culprit […]
