We’re at dinner near a restaurant less than two blocks from the ICU where my baby is laying. It’s 9:30 at night. I don’t have enough words to express how thankful I am she’s here. We’re talking about recent events and changes in Marshall’s appetite: the strokes, the post stroke seizures, the breakthrough seizures from […]
Marshall will not likely be stepping down from the ICU today. Yesterday he woke quite happy and as the day continued, his mood declined. By the afternoon he was plain grumpy. By last night he was nearing the inconsolable state which landed us in Upstate. Last night’s nurse’s instincts were as fierce as mine in […]
I held Marshall once since he came to the ICU thanks to the brain ekg cap. That came off today. Annnnd I am FINALLY ROCKING, DANCING, CUDDLING, AND HOLDING our boy 🙂 CT today to check for post stroke issues Mri series Tuesday Holding my breath in the meantime… And so thankful.
Marshall went back into the ICU late yesterday afternoon following a four hour incident. He is ok. The neurological team is evaluating him and we won’t know more until later today. We know he had a stroke. I knew before the team and as it happened. In fact, I told Michael he was having a […]
The wonders of technology allowed Marshall & me to witness Isaac’s kindergarten graduation ceremony. Thank you, Facetime, and all parties facilitating the endeavor, for such an opportunity. And, more importantly: CONGRATULATIONS ISAAC!!
It is so close I can see it. And it looks like it hurts. He is pretty grumpy about it…poor kid
Marshall isn’t one to sleep through the night. And tonight I am having trouble getting back to it. So not only do I get to watch the little man sleep but I have the time to share a really powerful story. In the company of a great nurse who Marshall is quite fascinated with, I […]
Dr Friedman stopped in to let us know the transplant surgeons have reviewed the images from Marshall’s CT scan yesterday. Open heart transplant surgery is possible if Marshall is determined to be a good candidate. The teams meet and present again tomorrow afternoon to complete Marshall’s transplant evaluation. We may find out more after that.
All I can really say after days of hearing “after we know x, y, z, we can make a plan” is this: Marshall will have the final say in any plans all of these teams of doctors try to make. I have found a tremendous amount of (restrained because he is still in the hospital) […]
