Marshall gained weight again last night!! His appetite has returned!! Hip-hip-HOORRRAYYY! Overall, he is doing as ok as a kid with a failing ventricle can do. The great news is he is happy. And comfortable. He likes to sleep by day in my arms and by night in his crib. He enjoys the entertainment Michael […]
Not much to report other than Marshall spent mostly all of yesterday FEEDING! ANNNDDD he gained weight overnight. So he stalled the team on dropping the n.g. tube for at least another day. Yeah for small victories!!! Pray hard he continues to eat please. Right now he is down to 13 lbs 11 oz from […]
Many many many thanks Nurse Practitioner E!
Marshall has been holding his own without additional oxygen since just before noon!! And his appetite is BAAACCCKK! He has nursed more today than he has all week!! He still has to show the team he isn’t losing weight or else…he gets a n.g. tube. They only gave us until tomorrow. But I held them […]
Marshall has had more to eat since 7:30 a.m. today than he has for several days. So. Incredibly. Thankful.
Marshall will get placed on the transplant list unless… (insert any of the million things which could go wrong) Then. We. Wait.
“Every father should remember that one day his son will follow his example instead of his advice.” Charles F. Kettering, American Inventor
Marshall won’t eat but he is happy. We are still doing this weird dance. Docs think he is making process (he is back on the floor instead of the icu) but I think he is moving sideways. He is on oxygen now. And he is still so awfully sick. His eye sparkle is dull. He […]
Marshall is stable enough to go back to 8 East! That makes us one step closer to the door on some level 😉 On others, he isn’t soing so well. He won’t eat. And hasn’t been eating. The team will take action on that very soon. So we dance…and dance…and dance…
Marshall’s progress can only be equated to a complicated dance between progress and set backs. But overall the momentum is going in a direction. Which I’m not sure of but a doctor on the heart failure and transplant team assures is a forward direction. Yesterday he nursed some. Win! And he laughed at his grandma. […]
