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themiracleofmarshall

one little heartbeat at a time

Author Archives: mamawillloveyouforever

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Eventful Evening

July 20, 2014 by mamawillloveyouforever

Marshall decided to spice things up last night. So much for a quiet night cuddling and watching a movie… First he hurled his meds all over the both of us. Right after his bath. So we cleaned him up. Then he broke out in this HUGE, raised patchy rash. And he rounded out the night […]

Posted in Heterotaxy, Pulmonary Atresia, Right Ventricle Dominant Unbalanced AV Septal Defect, Total Anomalous Pulmonary Venous Return | Leave a comment

Michael introducing Marshall

July 19, 2014 by mamawillloveyouforever

To the “wild” animals of Prouty Garden! Awwww

Posted in Pics | Leave a comment

Some relief and ample reassurance

July 18, 2014 by mamawillloveyouforever

Dr Baird ANNND Dr Friedman were here together this morning. That was a powerful moment.   Especially when Dr Baird tickled Marshall’s feet.  I lost count of how many times I have watched members of the world’s best team engage with this adorable life they have thankfully extended with life saving measures. When I get […]

Posted in Great Minds Think Alike | Leave a comment

He’s a little fascinated

July 18, 2014 by mamawillloveyouforever

By the baby in the mirror 😉

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Bumped

July 18, 2014 by mamawillloveyouforever

Marshall’s spot in the Cath lab has been bumped. He is on the schedule for Monday.  Maybe the third time will be a charm…

Posted in Great Minds Think Alike | Leave a comment

Tightrope

July 18, 2014 by mamawillloveyouforever

A restless night of sleep doesn’t do much for any of us.  And there wasn’t a whole lot of sleeping for me last night.  But at least I was awake early so I could spend more time with Marshall ;-).  There are beds in the ICU so far today. Soooo Marshall leaves at noon for […]

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Happy Good Morning

July 18, 2014 by mamawillloveyouforever
Posted in Gratitude & Laughter, Pics | Leave a comment

Scratch that

July 17, 2014 by mamawillloveyouforever

Cath has been cancelled There is no room in the ICU Bittersweet…sad relief on this crazy rollercoaster. Marshall is well enough to wait some. But there are so many sick kids here…

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Cath has been moved up

July 17, 2014 by mamawillloveyouforever

Marshall was third case (going in at around 2 p.m.) Now he could be first or second.

Posted in Heterotaxy, Pulmonary Atresia, Right Ventricle Dominant Unbalanced AV Septal Defect, Total Anomalous Pulmonary Venous Return | Leave a comment

Standing Practice

July 16, 2014 by mamawillloveyouforever

Just this week Marshall learned how…so now he practices every chance he gets.  We will have him dancing in no time 🙂

Posted in Great Minds Think Alike | Leave a comment

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I want to tell the world how much I love you because I don’t know how much time we’ll have heart to heart

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Think of the number of lives we could help if we could.

When I don't know what to do, I defer to people with greater knowledge, greater wisdom, greater experience, and greater perspective.
And Marshall's health is no exception.
The difference between life and death for hundreds of babies, like Marshall, born with special hearts, comes down to a lot of things. But in the process of securing the help Marshall needed, I found it often came down to knowledge, money, resources, and access to information.
We're working as hard as we can to gather all of the above. And sometimes that just isn't enough.
You may check out the fundraising website some truly incredible people set up for our family by going here
Any donations we receive will be designated solely for the purpose of ensuring Marshall gets the best care we can offer during our time with him. Though I hope that time is long, there are no guarantees. But one thing is certain: every dollar we raise (beyond covering Marshall's medical and travel expenses) will be used to establish a foundation dedicated to helping other families as they manage their child's congenital heart disease and congenital heart defects.
An anonymous donor once offered to match every dollar in donations up to $10,000. For his or her support, help, and prayers there are not words enough to ever repay our debt.
Think of the number of lives we could help if we could.
Please help if you can.

With Supreme Gratitude, Our Family Offers Our Thanks to:

Dr K Nurse T Sonographer E Dr. E Dr. S Sonographer C Dr  No Dr  N Dr Friedman The Entire Staff at Boston Children's Hospital Shay Sonographer B NBT Bank Sea Waves Technology Stomping Grounds Art: Books: Gifts Kim at my former insurance The great folks at Blue Cross Blue Shield The Wild Boys Penny Erin Bob and Linda The Baker Family Tammy Roberta Cindy Martha Donna Jim, Rob, & Dan Cassie Martha Rob Patty Pam Sarah Terri The Day Family The O'Connors The Bennett Family Ruth James, Beth, & Lily Micah Jenn Julie Paul Fay Erica Jesi Susan B Sharon Kathy Karen Carin Monica Nichelle Sue M Mary Barbara The Ellis Family The Le Family The Sabino Family Mang Insurance Ryan Mangrum The Class of '97 Laura Rachel Eric Wcom Wendy CompassionNet Alicia Jan Gilligan's Frontier Dollar General Big M Service Pharmacy

Everyone who shared Marshall's links

Everyone who read Marshall's blogs

..and many more!

“It is not the critic who counts; not the man who points out how the strong man stumbles, or where the doer of deeds could have done them better. The credit belongs to the man who is actually in the arena, whose face is marred by dust and sweat and blood; who strives valiantly; who errs, who comes short again and again, because there is no effort without error and shortcoming; but who does actually strive to do the deeds; who knows great enthusiasms, the great devotions; who spends himself in a worthy cause; who at the best knows in the end the triumph of high achievement, and who at the worst, if he fails, at least fails while daring greatly, so that his place shall never be with those cold and timid souls who neither know victory nor defeat.” Theodore Roosevelt

“I believe in miracles, how ’bout you?”

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