Marshall caught viral gunk from his brothers. That’s the bad news. The good news is he flew through the milrinone wean. It’s effects last 5-10 days once it stops per one of the transplant & heart failure doctors. So he isn’t out of the woods. But he has found a clearing. It is likely he […]
When Marshall was fresh from his first surgery, a 22 year veteran nurse looked me in the eye and said he wouldn’t thrive with just breastfeeding. That he and I just “can’t do that.” He tripled his size in the months we had him home. And grew and grew until his heart was so weakened […]
Well it is official Docs had meeting and sent social worker in to apologize: they are dropping the milrinone tonight. He will likely be off of it tomorrow or the next day. So your thoughts and prayers would be much, much appreciated (not that we don’t always but maybe more so than ever) because much […]
Time for me to vent. I try not to do that before an audience but I’ve soooooooo had enough. I will preface this by saying the important stuff: #1: I am really, truly, incredibly thankful that the world’s best have turned Marshall’s health around. Without them, our little miracle wouldn’t stand a chance. And he […]
Nothing like putting your toes in the grass on a warm summer’s day 7/20/14
Cancelled. Again. Still. No. Room. In. The. ICU.
For helping me get n.p.o. (which I believe may really mean “not pleased and ornery”) Marshall to sleep. Marshall has a thing for guitars…go figure, right? Our nurse is double checking on the time as I type. As of yesterday, the cath was set for noon. Breathe, Rebecca…
A good nap, cuddles, play, & a trip to the garden are on today’s agenda. As long as Marshall’s temperature doesn’t exceed a specified number, the cath will still go on as planned tomorrow.
Marshall was babbling and playing yesterday morning. And he let an accidental “Dada!” slip…this means it is only a matter of time before he intentionally says it 🙂
To be a little less mundane than usual. But around here boring is better. Some of Marshall’s labs came back. His white blood cell count is high. And he has a low grade fever now. He is smiling still. So it could be worse. Hopefully this won’t change the cath plan for tomorrow… Please send […]
