Photo credit: Dan

May all of your wishes come true!

We are so thankful for you!

Though the day didn’t go as expected, you have a really great party hat!

Marsh woke at his dad’s thinking there was something wrong with his pacemaker. His heart rate was 161 bpm. Fortunately the great folks at Upstate and Medtronic were able to override this heart rate and break the arrhythmia.

Round FIVE in the Marshall vs. arrhythmias battle and on Seth’s 19th Birthday…

One “ sleep” (more like a nap) in the PICU, a med increase, and we went home…

After 12 years, one month, and 13 days, pondering “why?” (perhaps even blaming myself because there was no other logical answer since I was the one who grew Marsh,) the world’s best and others are doing a study on people with single ventricle hearts and their family members to find not only the answer to the why, but to find a CURE ♥️

https://www.additionalventures.org/