Marsh is having a good day so far:)

I started this blog years and years ago to allow everyone to know the happenings of Marsh’s experiences living with his precious heart.

Now that Marsh is capable of major milestones like reading, writing, using technology, and even declaring what goes on his “Memories” (as he calls this blog,) I find myself hesitant to post all of the updates with as much detail that I shared before he reached these major milestones.

The last thing I want is to add to the trauma that Marsh, his brothers, and all of us who love them carry daily.

That said, I also feel that it is all of the good thoughts and prayers have been (at times) more powerful than even the world’s best medical teams.

So I beg of you to keep Marsh and his brothers in your thoughts and prayers if you have any to spare as the days bring us nearer to April and the inevitable trip to Boston.

Thank you doesn’t begin to encompass my gratitude.

Hugs and love ❤️❤️❤️❤️❤️❤️

To revert pacemaker settings since yesterday’s changes didn’t go so well:/

Please send a good thought Marsh’s way.

Hugs and love ❤️

This photo was taken right before Baby Marsh fell ill with RSV.

He still makes this face when certain emotions flow (which also still brings a tear to my own eye). ❤

🤞 The belly bugs are going away

In crazy surprising news, I awoke to a career opportunity today.

After 1,223 days of searching, I (fingers crossed) have employment once Marsh gets over his present medical hurdles.

There are no words to express my gratitude for this opportunity and all of the good thoughts/prayers for Marsh and his brothers. ❤❤❤❤❤❤

Marsh fell ill with a particularly horrific stomach bug (the worst I have ever seen during my 37 years spent caring for children) in the early hours of Sunday morning… on top of all of the events of the week.

He’s doing ok now but unable to eat.

Please send healthy thoughts and big prayers.

Hugs, love, and so many thanks❤