Minutes away

by

From blowing my lid and throwing down on Marshall’s nurse. I dont believe in violence but rest assured, I outweigh her by at least 20 lbs. 

Marshall is seriously struggling with this #! $@ vent tube that should have been removed by now. 

I have video footage of him fighting with it to the point that I got the nurse from across the common area to check on him.

Because his nurse was no where to be found.

And his heart rate and blood pressure were zooming.

He could have used this energy on getting better rather than wasting it fighting this awful tube.

His nurse said something about respiratory being here at 4.

All I have to say is she better have meant it…

And he sleeps

by

Marshall’s midday “blood gas” tests all came back. Lactate is low again and all else is well.

Small sigh..now back to hold in my breath.

His nurse says the ventilator will go “later today” and we shall carefully (because he still has an atrial line, pick, drain, & iv) be able to hold him hopefully this evening.

PLEASEOHPLEASEOHPLEASE

He’s MAD & wants the #! $@ tube OUT

by

Marshall has passed their tests and then some.

Today he is mad as h-e-double-hockey-sticks and wants the #! $@ tube gone. It is obviously a source of major discomfort.

And terrible to watch him fighting with the thing.

The good news is his team is listening.

Dr Baird greenlighted ditching the ventilator, a line to his heart, and his chest tube.

His lactate is up again (but not significantly.)

And everything is “good.” 

So forward he goes…thankfully.

Soon

by

More pics will be posted soon! Right now Marshall has to climb a few more steps before I can give you a visual.

But we had a nice surprise when we arrived for our visit today. Marshall’s nurse covered him with his special blankie made by Grandma Martha!!  And the one from Auntie Erin is waiting nearby just in case we can hold him (it makes for a great stand-in Boppy).

And his nurse today let me kiss him (I’m too short to reach without dropping the side of his bassinet so this is HUGE for me!!)

Marshall is a bit more wakeful. And he has lost his internal temperature monitor & his gi drain. His lactate is low and he is weaning off morphine.  He is no longer on antibiotics. And his feeds have been upped to 8ccs!

Annddd his nurse today thinks if nothing arises , the vent can go tomorrow. 

Please say a little prayer or keep the good thoughts coming… every bit helps.

Hopeful versus Realistic

by

I am a TERRIBLE MOM WHO slept until after 10…and awoke to the “boing, boing,” of Michael’s phone ringing.

It was Dr Friedman with an update. Marshall is doing well, coming out of sedation nicely, and his blood levels & circulation are stable.

I argued a bit with him over when the vent should come out. He said I was being “hopeful.”  And that Wedesday or Thursday was “realistic.”

Here’s hoping “hopeful” wins. I’ve already seen what our little boy is capable of.