Look world, notice what is missing?

by

image

Marshall ripped out his NG tube during an xray today. The nurse agreed to let him eat without it for 24 hrs before they put it back in.

So far, so good. (And I managed to get him to take a bottle too!)

They also had to rebandage his belly from the “Supermom Terror Incident” & che PICC line. His nurse remarked when they brought him back: “You should have seen him! This boy is a WILD MAN. you are going to have your hands full when he gets bigger.”

I told him he will fit right in with the rest of us 😉

And his belly air bubble is “fine, if not smaller.”

Whew…for now.

Please extend good thoughts

by

Life keeps putting people in our lives to remind us of where we could be and to take nothing for granted.

Our roommate, beautiful, blond Baby K is a 14 month old. She and her parents have been here for 7.5 weeks.  She is very, very, very sick. She can’t even sit up.

From what I have inferred and overheard, she is in heart failure. Likely the latter stages.  And her parents are just getting the run around from her doc.

And as I was sneaking out of the pump room on 8 South (shhh I needed some quiet), I ran into Baby J’s mom & twin sister.  Though it was great to see them, the news wasn’t so great.  Baby J is still in the CICU and now has an unexplainable fever.

And I haven’t had time to check in on Baby B since early this week.

Send some good thoughts this way please. Everyone here needs them…and as today reminded me, dome more than others.

Last night

by

I slept in a bed for the first time in 16 days. Michael stayed with our little miracle.  Yes I freaked out. A lot. And when michael didnt reply to 3 texts, i called panicking.

Everything was ok.

There’s something restorative about getting away from hospital traffic, air, beeps, bells, & whistles.

When I awoke Isaac said “Mommy you snored last night . Why is your skin soft? And your belly so little? Are you happy you are normal?”

I was happier to be able to reach out and touch these boys of mine in all of their wildness & rambunctious energy.

And per the update Michael sent, Marshall ate almost a full feed by bottle this a.m… a whopping 39 ml!! 

Adios N.P.O. & Oxygen

by

image

Marshall FINALLY got the ok to eat.

Soooo his team gave him Pedialite?
YECH.

The good news is he did pretty well with it though and didn’t lose a drop from the bottle. 

And his dad & I cheered him on the whole time.

The not-so-great news is he took in approximately 1/7 of what they wanted him to eat. The rest “gets hung” per his nurse…which, I infer, goes in the NG tube?!?

This feeding challenge is so new to me.

He gets more Pedialite in a few hours and a skimmed bottle of the good stuff at 6. 

Great job little man!! Keep up the good work!