Isaac is beginning to feel better thankfully!  I can not offer enough of my gratitude to the health care staff (as well as the teaching and administrating staff) at the school<3

Marsh had sooo many laughs and sooo much fun!

WE

DO

NOT

HAVE

TO

GO

BACK

TO

BOSTON

UNTIL

THE 

SUMMER!! 

(Almost but not as good as Grandma’s)<3

Marshall had his cardiologist appointment today with Dr S.  It was the first appointment since OCTOBER (wahoo!) and we have mixed news. 
The good news is the gradient in Marsh’s pulmonary veins is unchanged. The not so good news is Marsh’s heart function has not improved and is the same as it was six months ago (we all have been hoping hard for improvement over time as the heart heals.)

And Marsh now has a “very small but rather common with single ventricles” leak from his aortic valve.
Since it has been 2 years, 3 months, and 10 days since we last took Marsh to Boston, Dr S says we are “overdue” and need to go to get things checked out. 
And prepare for the third surgery… 

It’s been a long day after one of the longest months of my life so far so no more thinking for me today…

And if you can please pray. Or send good thoughts.  Please. 

Isaac is really, really sick.

Quite frankly, I’m terrified.  The not knowing is almost as bad as seeing him hurting and wishing it were me instead.

Isaac and I were in the e.r. yesterday for 3.5 hours (thankfully Michael kept Marsh home so we didn’t risk the littlest ginger miracle getting more sick). 

Isaac has done nothing but sleep for almost 3 days… and has been sick with gi issues intermittently for months.

The xray of Isaac’s gut was fine. His labs for cbc (blood count) &  kidney/liver came back abnormal.  He has a low grade fever despite amoxicillin for a dental issue and tylenol.

Having spoken to the ladies at the school clinic, this could potentially be mesenteric lymphadenitis. 

Isaac is going back to the school clinic today.  Fingers crossed we can get Isaac into the gi doctors at Upstate Golisano.

In the mean time, if you have any healthy thoughts to send to our gingers  they’d be returned tenfold.
Tomorrow is Marsh’s cardiology appt…ugh this month needs to end…