4 years ago today

Marsh’s heart rate elevated to 236 bpm. He was the sickest he has ever been, cardioverted, oxygen dependent, and spent 20 days in 2 different ICUs. The pressures in his heart were so great they broke a stent to his pulmonary veins. He also (miraculously) survived a fourth open heart surgery.

There are not enough words to express how truly thankful I am for every kindness during that time of our lives and all of the prayers/good thoughts sent ❤️❤️❤️❤️❤️❤️

Five Years Since the Fontan (Failure)

It’s been five years since Marsh had his third open heart surgery.

I don’t care to remember the details of that trip to Boston but I do care to remember how hard he has fought (and still fights) to be here with us.

Thank you so much for being you, Marsh, in all of your Marshallness.

And thank you to everyone who has sent a good thought or prayer to him. Please keep sending them since the world’s best medical teams can only do so much. ❤️❤️❤️❤️❤️❤️