Marsh had a mostly quiet night. His heart rate is hovering in 120s with iv antiarrythmic. Respirations were slightly off baseline.

Xray showed fluid in the lungs and some enlargement of his heart.

Labs came back still skewed.

He is resting comfortably.

We are waiting for cardiologist to begin a more solid plan.

I reached out to Dr. Friedman in Boston just to have them ready if needed.

I will update when I have more info.

Please, please, please send those healthy strong thoughts/big prayers.

Hugs and love and so many thanks❤

Greetings from Upstate Golisano

Marsh had what looked like the stomach bug. A check of his o2 saturations indicated that his heart rate was in the 200s.

He is in SVT (supra ventricular tachycardia) on call cardiologist is trying iv anti arrhythmia meds.

They are not working.

Waiting for more info.

Please send some good thoughts/prayers/whatever you believe❤

Marsh’s belly had a rough night (and we all had a long one)…zzzz. 🤞 he feels better in no time

It has been one year since Marsh’s last (and failed Fontan) surgery.

Life forever changed that day one year ago.

And it will never be the same again.

It is so wonderful to see Marsh’s excitement and joy at school. And we have such a great team at S-E💖

His “maturity” led to the discovery of an umbilical hernia. 🤞 he feels better soon💖