The vicious ferocity of this heart disease ravaging our precious boy can only be described as a heart storm.
But I am neither a cardiologist or meteorologist.
I am just his mom trying to assist, process and digest. And I risk rambling…
Marsh did not tolerate the cardizem wean well yesterday. And his fluid balance was/is scarily overloaded. And his belly was/is really sick.
I will spare the details and leave it at this: His heart is very sick. His old nemesis heart failure has returned. According to labs, his bnp is elevated from 236 in December 2017 to 400 this a.m.
Also, labs indicate his kidneys and liver have been tremendously overworked.
To quote our boy (from three days ago): “it isn’t fair!”
And I would apologize for not sharing better updates but I am not sorry. I selfishly tend to just hold Marsh as much as I can and help him be as comfortable as possible.
The rest can wait.
As for that – the rest – Dr. Smith returned from out of town and he thankfully evaluated Marsh late yesterday. Dr. Smith performed an ekg and echo, restarted the cardizem, and formulated a plan to get Marsh to a “normal” heart rhythm.
Because of all of this, Marsh has been NPO since yesterday morning. But the time has just flown.
Today lies before us already.
The Upstate team thinks they can solve the arrythmias with electrical stimulation.
I think climbing back into the hospital bed to cuddle Marsh as long as possible is a great idea.
Please send good thoughts, prayers, whatever you believe. The strongest person I have ever known is fighting with everything he has got left in ways no one should ever have to❤
