Greetings from a mama who managed to sleep for 5.5 consecutive hours for the first time in a week.

Marsh and his dad had a boy’s night. Marsh was up late so he was still asleep when I returned to him this a.m. His nurse wasn’t able to chat long but his o2 and heart rate numbers looked ok to me.

I am not sure what the plan for today is ( as Marsh’s dad was half asleep when I was there) but know that it probably involves more labs, xray, And ekg.

More updates later.

Please send good thoughts and/or huge prayers .

Hugs and love❤

Fever is back 37.9 Celsius

Yesterday was horrible for Marsh. As the day progressed, his breathing worsened in ways I can not even bear to describe.

All he wanted to do was have me hold him. And watch movies.

Today, though, brought an improvement.

Marsh woke up smiling

And had 2 big, big outs and one 1/2 cup of milk in.

He is presently drawing.

A complete 180 from yesterday for now🤞

With motrin on board

Blood and urine cultures next

He was supposed to be discharged. Spiked fever between 103-104 degrees F

Dr Kane (Friedman’s stand in) just stopped by. The echo looked good. The gradient and function are ok. They want to watch Marsh overnight and 🤞 make plan to get out of here.

Please oh please hope, pray, wish, beg, send vibes, what have you to get us back there…