My favorite almost six year old and I found joy at Paddleford today in very spring like weather.

The good news: His upper respiratory muck has improved.

The bad news: I suspect the pulmonary veins are problematic again. He seems to be operating at 33% compared to how well he was.

I hold tight to the good news.

I have questioned since October if I would be able to do simple things like play with Marsh at his favorite park.

And we did today.

Marsh for the win💖

And he thankfully has been improving from the upper respiratory muck every day…Here he is now with his pack of pups:

Please send a healthy thought or prayer Marshall’s way: Marsh’s follow up with Gwen didn’t go so well. His lungs are full, sats are low… it is very obvious he needs o2 (which I don’t feel comfortable travelling in the car in event of car accident and such). She recommended going to the E.R.

He wants to be home.

I spoke to Syracuse at Pediatric Cardiology beginning with Super Smith’s nurse. She reached out to the attending cardiologist. They both spoke to Super Smith. They are all in agreement with Marsh’s request to remain home with o2 and very tight parameters – watching for high fevers and respiratory/other distress. If he should go past the parameters they declared, he is to go to Golisano.

They also said they would follow up Monday.

His appetite is good. Output is ok. I picked up saline drops to help him clear his nose and he (in his droplet mask) not only wormed a $5 spiderman movie out of me, but ran around the Dollar General.

I will update more if anything more changes. 💖

Marsh coughed much less in his sleep (and did not require oxygen) but the cough deepened overnight.

Nebulizer treatments, cuddles, 02, and careful monitoring until this clears…