
Happy Father’s Day

Nature’s surprise was waiting in the yardđź’–
Spider Marshall is in townđź’–

Whhhheeeewww

Busting out of Upstate

So, so, so thankfulđź’–đź’–đź’–đź’–đź’–đź’–
Whew.
Upstate Evening Smiles Update




The 24 hour blood cultures came back negative so it is looking good on that front.
I requested iv lasix for the afternoon since the results last night were greater than the tablets. And we are just sitting here anyway…
Iv antibiotic again tonight.
I think they may have rounded without me this afternoon.
🤞 Marsh can turn this around and get out of here soon. Please keep sending those big thoughts and huge prayers.
Hugs and love and many thanks đź’–
Upstate Rounds Day 1
There is not much to report. Marsh had a quiet but very, very late night so he is still sleeping. The plan for today is “just hanging out and watching to see how he clears the effusion.” per the rounding team. No changes with meds.
Dr Smith has called twice already.
Please keep Marsh in your thoughts and prayersđź’•
Upstate

Eight days ago Marsh played outside for two hours and walked .6 of a mile home (the longest walk he has ever taken🎉).
Then we had a great report from Super Smith.
And now we are here in Upstate waiting for results.
The fever keeps returning in the late afternoon and Marsh’s respiratory system is just off. Marsh’s pediatrician Gwen sent Marsh for an x-ray this morning. The x-ray showed what Gwen expected: a pleural effusion and pnuemonia on left lung.
I made contact with Dr. Friedman in Boston. He was optimistic that more diuretic for the effusion and an antibiotic for the pnuemonia with a stay at Upstate will tune Marsh up.
I also talked with Dr Smith. He reviewed the x-ray and called to let us know that it looks like the fluid is compressing the lung but otherwise it is “good.” He also said that he too thinks it could be the pulmonary vein issues but Boston is not accepting patients without known Covid status.
So we wait… Marsh was brave for iv placement. The Covid test, labs and x-rays have not come back. The ekg looks good.
Super Smith stopped by to check in. He suspects pnumococcal pnuemonia but we need to wait on the labs and other tests to help Marsh kick this thing.
Please get those big healthy thoughts and prayers going. We will send them right back when he needs them a bit less.
Sending love and hugs and so many, many thanks đź’–
P.S. Covid test is negative
Rough going here
Marsh has developed a 🤞 summer cold/illness that made the weekend really tough.
The good news is Marsh has turned it around 180% from where he was Saturday afternoon.
We are following up with his pediatrician in the a.m. so if you all could please some really healthy thoughts and/or huge prayers, they will be returned when Marsh needs them a bit less.
Hugs and love and so many, many thanksđź’–
Beautiful Sunset Tonight
