Please send big prayers and good thoughts to Marsh❤❤❤❤❤❤

Early morning tomorrow. Please send good thoughts and/or prayers. Hugs and love ❤❤❤❤❤❤

Marsh has gained 1 lb and grown 2 cms since we saw Super Smith in August!!! O2 sats are 85% WITH A MASK on (which is great for him!) We’d love to turn back, forgo the cath and go home if we could… please send prayers and/or good thoughts. We’ll send them right back❤❤❤❤❤❤

Off to Preop Testing for tomorrow’s heart catheterization

Please send a good thought and/or huge prayers for safe travels and good news. So many thanks❤❤❤❤❤

Marsh’s Fontan (3rd stage palliative open heart surgery) failed three years ago today. I won’t ever forget how he lingered for five days far too close to a place we, as parents, all hope to go before our children… Then he had massive pleural effusions. Then he developed not one but two hospital borne bacterial […]

Photo cred: Marsh’s dad