Just returned from Super Smith appt with good news. Marsh has been cleared to return to school next Monday. No gym or recess until June 1 because of the bruising. It is imperative he has multivitamin with iron to bring his hemocrit back up. The fatigue is likely a result of anemia but because he […]

Marsh had a small pleural effusion one week ago when we left “heck” (to quote our ginger miracle.) Please send a good thought or prayer that the cough gets better. Many thanks from the bits and puts ❤❤❤❤❤❤

I finally counted up the number of times Marsh has been cathed. I remembered 11 without even looking at his medical records. Not bad for an old lady;)

Behold the Jack O’ Lantern grin of a boy transforming before our eyes to a young man ❤❤❤❤❤❤

Marsh had his follow up with Dr Matott (pediatrician) today. It was so-so. His liver is enlarged. He is really limping. The left leg really hurts. The “oozing” (bleeding) finally settled down. The bruising has worsen. Vitals are ok. In good news, he is perking up…and more mobile yesterday and today than Friday and Saturday. […]