– Direct quote from Marsh on how he is feeling. Per Dr. Smith’s instruction, I went up on the lasix last night to try to help Marsh. It didn’t work. We leave for Boston today after a 12 day run of something I can’t even describe with words. The plan is preop testing tomorrow. And […]

The big wild boys made a Spider-Man pancake for Marsh! 💖

All of those good thoughts and prayers are working. Marshall’s condition has significantly improved with meds, chest pt, oxygen, and great care regarding fluid intake. Marsh had a rough wake up this morning. He is ok but struggling. Please keep sending them and we will send them right back as soon as he needs them […]

Dr. Smith called with the preliminary labs this morning. The really good news is Marsh can stay outpatient for now until or unless his medical needs exceed my (very limited) capabilities. Marshall’s potassium is slightly low, his white blood cell count is fine, his sed rate and c-reactive protein are elevated (yet at the same […]

Dr. Super Smith confirmed that the left pleural effusion is the likely culprit of the fever and breathing difficulties. The x-ray is unchanged. Marsh had to have a poke (for which he SCREAMED which helps clear these lungs.) If the labs return abnormal, Marsh will have to be admitted at Upstate tomorrow morning and have […]

We are waiting for an xray. Then Marsh has an appointment with Dr. Super Smith. Please send prayers and good thoughts. Hugs, love, and so many thanks.❤

Six years ago today baby Marsh underwent his second (and 17 hour!) open heart surgery on his eight month birthday

We are cheering you on here at home for now. I can not believe we have a JUNIOR(!), Freshman(!!), seventh (!!!) grader, and first (!!!!) grader already!?!?!?!?! May you all have a great school year💕💕💕💕 And in not so good news, Marsh’s fever returned and increased last p.m. at around 10:20 p.m. Plus he is […]

Marsh just wasn’t himself yesterday. And he had a low grade fever which responded to tylenol (thankfully). If you have a good thought/prayer/whatever you believe to send his way, please do❤