Good news: Marsh smiled 4x last p.m.! Though his o2 was wobbly last night before sleep, it has settled today in his sweet spot in the 80s. He woke up comfortably after a good sleep with a big pee (t.m.i. but a good signal diuretic is working!). He already ate an entire bag of salt […]

Learn from my experience: if you cry with a droplet mask on, you chap your face…

Dr. Friedman stopped by before he left for the weekend. The xray yesterday afternoon looked as good as the night after the cath. The ultrasound, however, showed both lungs have effusions or collections of blood – and there is no way to know other than repeating images. Every time the nurse came into his room […]

Xray complete. Ultrasound complete. Blood ordered. Please, please, please, please send big prayers and huge healthy thoughts❤

We aren’t leaving. Marsh’s hemacrit is too low and there is a problem they found in the xray with the left lung. So he is going to 8 East. I don’t have the heart to tell him we can’t go home. Please, please, please send good thoughts and big prayers ❤

Dr Friedman was just here. The pulmonary vein stenosis has progressed significantly. They are hopeful the cath will alleviate some of the resulting problems and progression. And they are changing the diuretic to hopefully get a better response.

Our meeting after the cath with Dr. Esch could have been worse. The left lower pulmonary vein is gone. Left upper pulmonary vein has been stented. The left lower could grow back if the blood flow to the upper improves thus the stent placement. The Glenn on the left completely rerouted and formed collaterals. Pressure […]

Will update more later

They are getting ready to remove the catheters now. Will be a half hour or so before we hear more.