Marsh woke up rough. His color was off and he was really puffy. He perked up after his a.m. meds but not much. And then he had a well child check up with his pediatrician. She’s PHENOMENAL (as is the rest of the team in the Norwich office) and has cared for Marsh since birth. […]

Marsh is ok. Really low energy. Perks up in the afternoon some. Appetite is back. Breathing freely. O2 sats are wonky in his left hand but good. Head is puffy. Still has peripheral swelling. New diuretic seems to be working🤞 Isaac and I took Marsh to school pond today. He walked maybe 20 feet. Our […]