Homeward Rounds
A quick chat with Dr E gave us some hope that we might be heading home tomorrow! It will be so great to have all of my boys under the same roof, even if it is just for the night. Big plans in Boston after that…
Category Archives: Round 2
Happy (Belated) Memorial Day
My mom gave me the “You need to update Marshall’s blog more!” talk yesterday. In my defense, I have a lot going on in my life with four wild ones, marriage, work, and life. Throw in a baby too big to hold with just one arm, a couple of technical glitches, and going through a […]
Because it IS harder
For starters, I have to tell you that I know Round 2 is inevitable. But I can’t imagine Marshall going through that again. So when Boston called to let us know when Round 2 would be, I wasn’t really prepared. As a parent, nothing truly prepares you for your child’s illness, injury, surgery, or any […]
Boston called with a Round 2 Plan
I need a few hours to digest… It will be in mid July. Breathe, Rebecca…
Waiting for the call back
Recent developments with our hometown cardiologists have brought to our attention the necessity of having Marshall evaluated by the Boston team. I will spare the details for now and include them in Marshall’s book. In the simplest of terms, it makes more sense to have the people who are supposed to do the second surgery […]
How sure are they???
After reading about Round 2, and given the confusion regarding the layout & placement of Marshall’s internal organs, I am now doubting if they are 100% sure he has a single left ventricle… just for the record
The heat is on…
And Marshall isn’t much of a fan of these warm temperatures. Luckily, he is not as cranky as he could be since I have not had previous experience mothering one so small in summer months. Plus our little miracle is dealing with much, much more than most. His oxygen saturations were wacky last week. I […]
“He’s thriving. You are doing a great job.”
When Harvard’s best says this, a woman like me has no choice but to listen. And share the news: Nurse Practitioner K ended our call last night with those parting words. Plus, look at Marshall’s face 🙂 Sooooo the good news is there is no bad news to report. After our hometown cardiologist appt yesterday, […]
Cardiologist Appointment
So far, so good! We go back in three months unless something changes after doc has conference Tuesday. We were instructed to get in touch with the Boston team to begin planning Round 2…
T-W-E-L-V-E WEEKS TODAY!
It’s a victory for our little miracle…so far. I’m pretty sure Round 2 of Marshall’s open heart surgery will be sooner than not. His oxygen saturations have been all over the place the past few days. And I’m confident it’s not the pulse oximeter. I’ve already been in touch with Boston so we know […]
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