Marshall’s cardiologist appointment with Dr. S went well. “I love you. You look great.” (direct quote.) That kind of medicine does the heart good. But it Dr S’ other words that are still echoing in my head. I would give nearly anything for Marshall to be well enough to postpone leaving his brothers and heading […]
Friedman. Confirmed. Marshall is getting readmitted to Boston Children’s on Sunday for a cath Monday. I am going to have a big cry. And then pack… Please keep the wild boys – especially the youngest – in your thoughts. And prayers if that’s what you believe… And if possible send whatever positivity you can spare…
If I had a quarter for every time someone said to me “He doesn’t look sick,” I would not have to worry about the over $2500 of Marshall’s medical bills that have gone to collections. Nor the over $15000 plus I have paid in deductibles, housing, food, gas, parking, supplies, medicine, etc… Yes I could […]
I just received the latest from Marshall’s team in Boston: his cath and Glenn will be in late September. Unless Marshall’s oxygen saturations decline then it will be sooner So it is back to isolation for Marshall and me in the weeks between then and now…. Breathe, Rebecca… Please send good thoughts, prayers, and any […]
Tomorrow marks the one year anniversary of when we found out Marshall was a boy. And when we found out about Marshall’s extraordinary heart. Just remembering that day brings me to tears. To say this week has been easy would be a total, absolute lie. To say the weeks since we were freed from “Hotel […]
We left three hours later than we had planned and are Massachusetts bound. Trust me, I am in no rush whatsoever to go back there. In fact, it seems like we just left. The threat of Marshall being re-admitted isn’t helping the way that I am feeling right now. Each and every goodbye with the […]
We have new worries. But we have a plan. And since we all love this little boy sleeping peacefully as I unwind my worry into this poor laptop, it’s long overdue that I let you in on both. Please forgive me. This is soooooooo much. Since I have yet to discuss the details with Marshall’s […]
Yesterday Marshall (again) reminded us that he is the man in command. He is the number one caller of shots. He is the ginger little dude in charge. His follow up appointment with Dr. Friedman and the transplant team left us with a whole bunch of unknowns. There really isn’t a plan at this point. […]
With Marshall not feeling well, I spend much of my time dancing and rocking and bouncing to keep him comfortable. So I am generally too exhausted to write. Please forgive me. For now the team is trying meds then bigger meds if these don’t work. More tests on Monday. His case will be presented at […]
Sooooo Marshall’s cath was full of all kinds of things to make it more interesting. Highlights (?) included our late arrival (oops on me for savoring more time with Marshall), difficulties in even placing the cath, a wait for the book incident I will call “A Fellow Blood Spray,” a question of whether to place […]
themiracleofmarshall 