Marshall is slowly being weaned from the sedation. I stepped out for a (really late) brunch and came back to Marshall in what the nurses call a “Welcome sleeve.” Seems he was up to his mischievous ways in the 1/2 hour I was out and was pulling at his vent and n.g. tube. I believe […]
Marshall is shedding fluid like a champ. And the team has begun the process of getting rid of things. They took him off dopamine. They took away the pacer. His saturations are great. His pressures are great. They also slightly decreased the oxygen in his vent. And there is mention of getting his chest closed […]
Marshall is in the same bed space (#23) as he was after his first surgery. If no one had told me he was him, I am not sure I would even recognize him as my own. To say the baby we saw last night looks like Frankenbaby isn’t intended to be rude. It is the […]
We Just talked with Dr Baird Surgery was a success. We now need to wait and see how the recovery goes. If he makes it through the next 8 hours, his chances will be very good. As for technical details, Dr Baird repaired the total anomalous pulmonary venous return and attached them where they belong […]
Marshall made it out of the O.R. and just got to the ICU That’s all we know. We are still waiting for Dr Baird.
I passed my baby off eight hours ago. I tried not to cry. The only experience I can equate the.feeling of passing Marshall off to OR Nurse J, an anesthesiologist, and a doc is it is a step above holding my dog at the vet on her last day with me. My. God. This. Is. […]
Dr Friedman stopped by following the medical – surgical meeting this morning. For the first time since Marshall first fell heart sick in May, the team is in absolute agreement. It’s unanimous. Going forward now is in his best interest. Apparently the team devoted more discussion to how they helped Marshall get well enough to […]
This is how we left him…happily laughing (and just a little “loopsied” as Tristen once said.) He is having his cath now. The team is going to try to place the stent (super cringe), check out and perhaps coil (cringe) the collateral arteries, peek at the coronary arteries (in July they discovered via CT scan […]
…when you are dragging your heels to your son’s hospital room and three of your favorite nurses are your welcoming committee. When we first hit the floor, Nurse J encountered us in the hall on our way to our room (a private, luxurious, spacious place with a mini fridge in the new section of 8 […]
Bad sleep. I am too tired for not borrowing words from the late, great Johnny Cash when he was describing his idea of paradise. I don’t want to go back to Boston. I don’t want my kids to be 308 miles apart again so soon. I don’t want to know what Marshall is going to […]
themiracleofmarshall 