So Marshall threw a curve in the path to get home. He has a fever. I hope he is just teething… since he keeps biting me this is a possible cause. And I refuse to consider other causes…so please send big thoughts and/or prayers to our littlest man.
There were no surprises other than Marshall woke up when the sedation shpuld have taken hold. There were a couple of concerns regarding where the veins return (something they will monitor closely) and the function (which hasn’t changed much). But everything looks good. If the team can optimize his meds, we could be on our […]
Marshall’s echo is in 45 minutes. Send big thoughts/prayers/whatever you can spare to our little fighting miracle. Every bit helps so much. As for how he is doing, he is grumpy today (which is nothing unusual since his body needs time to adjust to the new circulation). This morning he had the last of the […]
Thankfully Marshall’s fiery and feisty this morning. He is back to screaming at staff when they attempt to help him. And he is raking his hands and fishing with his fingertips pull what’s left of their bandages, tubes, & instruments. So after the nurse, floor doc, & marshall went a round this morning over an […]
Dr. Friedman stopped by yesterday after Marshall kicked his atrial lines and moved over to the floor. Even Dr. Friedman agreed “Marshall is progressing so well.” Yesterday he made lots of progress despite being quite irritable and out of it. He lost his chest drains, then had chest xrays (which looked good), they lowered the […]
Marshall spent 205 minutes on bypass during his most recent surgery. I try to stay in the here and now but it is impossible to NOT worry…
A group of incredible people joined forces to host a benefit to support Marshall “The Miracle” Sepello. I don’t even know where to begin to thank them. Every kindness means the world to all of us on this rollercoaster ride as we help Marshall wage his war against congenital heart disease and heterotaxy. I would […]
Marshall was taken off of the vent!!! They did the extubation around 6 a.m. 🙂 He is tolerating it well so far. He has lots of secretions and has to have chest p.t. It seems when he struggles, he retracts his chest. Then they suction. And I am sure that makes him mad. So that […]
The team has finally begun the “take away” process. They are weaning down the vent and had to suspend feeds in that process (just in case they need to reintubate). They have taken away the morphine drips and replaced the suctioning chest drains with much smaller ones. They have moved to bolus Lasix rather than […]
themiracleofmarshall 