Category Archives: Right Ventricle Dominant Unbalanced AV Septal Defect

One year ago today

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Dr S informed us Marshall had Heterotaxy. Just eight and a half weeks after the wild boys and I had this talk by the creek. I remember the absolute terror I felt after that “Heterotaxy Diagnosis” appointment with Dr S. How I called my mom hysterical in the car on the way home. How once […]

Unanimous

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Dr Friedman stopped by following the medical – surgical meeting this morning. For the first time since Marshall first fell heart sick in May, the team is in absolute agreement. It’s unanimous. Going forward now is in his best interest.  Apparently the team devoted more discussion to how they helped Marshall get well enough to […]

First Case Cath

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This is how we left him…happily laughing (and just a little “loopsied” as Tristen once said.) He is having his cath now.  The team is going to try to place the stent (super cringe), check out and perhaps coil (cringe) the collateral arteries, peek at the coronary arteries (in July they discovered via CT scan […]

You know you are in the right place…

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…when you are dragging your heels to your son’s hospital room and three of your favorite nurses are your welcoming committee. When we first hit the floor, Nurse J encountered us in the hall on our way to our room (a private, luxurious, spacious place with a mini fridge in the new section of 8 […]

“He doesn’t look sick”

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If I had a quarter for every time someone said to me  “He doesn’t look sick,” I would not have to worry about the over $2500 of Marshall’s medical bills that have gone to collections. Nor the over $15000 plus I have paid in deductibles, housing, food, gas, parking, supplies, medicine, etc… Yes I could […]