As I was taking photos of our little miracle this a.m., tragedy struck hard. My old sweet Katie (who has been here for me for nearly 14 years) took a turn for the worst. She passed in my arms at 10:26 a.m. I’m so thankful for the fourteen years we had. And so completely sad. […]
There is a story behind this one…but you will have to wait for Marshall’s book !!
Last week was so hectic I didn’t get the chance to report that Marshall saw his pediatrician for a follow up after our big Upstate Break. All things considered, he was exactly as he was supposed to be. His lungs were full of crackling gunk and his “well baby” appointment went as well as most […]
The balance (so far) for Marshall’s care at Boston Children’s. The heavily accented female voice in billing who took my call wouldn’t give me the exact figure right away. I had to ask three times. She gasped at the number the first time I asked. The second she offered “233” and a feeble “Well I […]
Hey world, I could have prevented what Marshall is going through. I said it. And I won’t ever forget it. Dr Infectious Disease stopped by to confirm it. He lectured me on the importance if immunizations as I was nursing my sick son. If I had known… Yes that moment has landed on the list […]
Before we left Boston, Marshall got a shot of Synagis to supposedly prevent the very illness stealing his strength and his breath as I type. NO ONE told me he would need a dose of this shot monthly. Luckily I just found this out on my own… As with any upper or lower respiratory issue, […]
I did some time traveling today after fetching the mail in the freezing cold. From what the mail carrier left, I apparently forgot my follow-up appointment post Marshall’s birth. His birth… My god I remember that day like it was yesterday. The pain was nearly as great as my fears for Marshall… except the pain […]
We received a letter from our hometown cardiologist which stalled Marshall’s spleen victory. I am saving the story of the incompetence for Marshall’s book. It will probably take me that long to cool off and find the grace needed to retell the incident objectively. But I’m furious. The letter we received today states that results […]
We all need to “Rock on!” as Isaac and Marshall suggested this a.m. as I was sipping coffee trying to recover from a near sleepless night… So here we are. And we are at it again… Please send us some good, strong thoughts and big prayers if possible. First thing this a.m., we learned that […]
I received this in the mail yesterday. If I said I wasn’t intimidated by the inherent threats this letter implies, I would be lying. In fact, after I opened it, I did my best not to vomit. I have four boys to raise, clothe, shelter, and feed in this crazy world. And one day of […]
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