Marshall will not likely be stepping down from the ICU today. Yesterday he woke quite happy and as the day continued, his mood declined. By the afternoon he was plain grumpy. By last night he was nearing the inconsolable state which landed us in Upstate. Last night’s nurse’s instincts were as fierce as mine in […]
I held Marshall once since he came to the ICU thanks to the brain ekg cap. That came off today. Annnnd I am FINALLY ROCKING, DANCING, CUDDLING, AND HOLDING our boy 🙂 CT today to check for post stroke issues Mri series Tuesday Holding my breath in the meantime… And so thankful.
Dr Friedman stopped in to let us know the transplant surgeons have reviewed the images from Marshall’s CT scan yesterday. Open heart transplant surgery is possible if Marshall is determined to be a good candidate. The teams meet and present again tomorrow afternoon to complete Marshall’s transplant evaluation. We may find out more after that.
With Marshall not feeling well, I spend much of my time dancing and rocking and bouncing to keep him comfortable. So I am generally too exhausted to write. Please forgive me. For now the team is trying meds then bigger meds if these don’t work. More tests on Monday. His case will be presented at […]
Sooooo Marshall’s cath was full of all kinds of things to make it more interesting. Highlights (?) included our late arrival (oops on me for savoring more time with Marshall), difficulties in even placing the cath, a wait for the book incident I will call “A Fellow Blood Spray,” a question of whether to place […]
For starters, I have to tell you that I know Round 2 is inevitable. But I can’t imagine Marshall going through that again. So when Boston called to let us know when Round 2 would be, I wasn’t really prepared. As a parent, nothing truly prepares you for your child’s illness, injury, surgery, or any […]
After reading about Round 2, and given the confusion regarding the layout & placement of Marshall’s internal organs, I am now doubting if they are 100% sure he has a single left ventricle… just for the record
And Marshall isn’t much of a fan of these warm temperatures. Luckily, he is not as cranky as he could be since I have not had previous experience mothering one so small in summer months. Plus our little miracle is dealing with much, much more than most. His oxygen saturations were wacky last week. I […]
Well, on the list of bad things, this is a minor offense. I entirely hung up on the lady at [an organization I can’t mention because they’re way bigger than me…wait for the book]. This morning I called to request Marshall get evaluated as per our Boston discharge instructions. And per his pediatrician’s prescription for […]
themiracleofmarshall 