Marshall is in the same bed space (#23) as he was after his first surgery. If no one had told me he was him, I am not sure I would even recognize him as my own. To say the baby we saw last night looks like Frankenbaby isn’t intended to be rude. It is the […]
I passed my baby off eight hours ago. I tried not to cry. The only experience I can equate the.feeling of passing Marshall off to OR Nurse J, an anesthesiologist, and a doc is it is a step above holding my dog at the vet on her last day with me. My. God. This. Is. […]
If I had a quarter for every time someone said to me “He doesn’t look sick,” I would not have to worry about the over $2500 of Marshall’s medical bills that have gone to collections. Nor the over $15000 plus I have paid in deductibles, housing, food, gas, parking, supplies, medicine, etc… Yes I could […]
Tomorrow marks the one year anniversary of when we found out Marshall was a boy. And when we found out about Marshall’s extraordinary heart. Just remembering that day brings me to tears. To say this week has been easy would be a total, absolute lie. To say the weeks since we were freed from “Hotel […]
Being home with all four of my boys yields such tremendous joy & extreme happiness paired with tremendous sadness. I live moment to moment and don’t have a lot of peace in this exhausting chaos. And the boys and I are constantly wondering when I have to leave with Marshall again. Marshall’s bloodwork from Monday […]
When we were expecting Marshall, no one properly warned nor prepared us for this experience. Granted they could not predict how things would be. Nor could they offer any believable wisdom. It is one of those things you just have to go through. So with each new nurse we meet, I offer my thanks. I […]
Time for me to vent. I try not to do that before an audience but I’ve soooooooo had enough. I will preface this by saying the important stuff: #1: I am really, truly, incredibly thankful that the world’s best have turned Marshall’s health around. Without them, our little miracle wouldn’t stand a chance. And he […]
We have new worries. But we have a plan. And since we all love this little boy sleeping peacefully as I unwind my worry into this poor laptop, it’s long overdue that I let you in on both. Please forgive me. This is soooooooo much. Since I have yet to discuss the details with Marshall’s […]
Today marks one month since I slept in my own bed… And I also Haven’t cooked a meal. Haven’t done mountains of laundry daily. Haven’t spent an entire day cleaning to have the house look the same as when I started. Haven’t gone grocery shopping with four kids. Haven’t curled up on the couch with […]
We’re at dinner near a restaurant less than two blocks from the ICU where my baby is laying. It’s 9:30 at night. I don’t have enough words to express how thankful I am she’s here. We’re talking about recent events and changes in Marshall’s appetite: the strokes, the post stroke seizures, the breakthrough seizures from […]
themiracleofmarshall 