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themiracleofmarshall

one little heartbeat at a time

Category Archives: May you never see what I have seen

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Bookmark (poem perhaps?) for Marsh’s Helpers

November 29, 2025 by mamawillloveyouforever

Hope and darkness Gratitude and light Mingling memories of Fear and fight Laugher and tears Celebrate and mourn And linger In bittersweet twilight (Coffee cheers to future polishing)

Posted in May you never see what I have seen, Things we can’t carry alone, Wild Boys | Leave a comment

Family is everything

August 30, 2017 by mamawillloveyouforever

I began this blog as a way to document the adventures of all four of the wild boys.  I wanted to share the joy, the fears, the experience, the highs, the lows, the inbetweens… and hopefully help others.  My long term plan was to convert the blog to a book once Marsh sailed to kindergarten. Sadly, […]

Posted in May you never see what I have seen | Leave a comment

Sick. Again.

April 4, 2016 by mamawillloveyouforever

And another trip to the ER Saturday  following a fall from the dining room chair. One staple,  a bunch of stickers, & a flag forward to now, Marsh is holding down the couch with a cold as the snow piles up on Spring… Send some big, warm thoughts please

Posted in Gratitude & Laughter, May you never see what I have seen | 1 Comment

The good news: Marsh does breathing treatments well

February 7, 2016 by mamawillloveyouforever

The bad news: He’s sick (again) and I suspect it’s croup (again)…

Posted in May you never see what I have seen | Leave a comment

He fell asleep with two hands

February 5, 2016 by mamawillloveyouforever

Wrapped around me…rather than his two fingers pinching my chin… So glad for cuddles and so thankful for now ❤

Posted in Gratitude & Laughter, May you never see what I have seen | Leave a comment

More Tears Night 2, T-minus 10 Hours

February 5, 2016 by mamawillloveyouforever

Book writing starts today while we wait…

Posted in May you never see what I have seen | Leave a comment

Tears

February 1, 2016 by mamawillloveyouforever

Of the worst kind are when your children are hurting and there’s nothing you as a parent can do but hope… Please send some good thoughts and prayers with me tonight to the little people who need them most ❤

Posted in Hope, May you never see what I have seen | Leave a comment

Wait for the book

January 25, 2016 by mamawillloveyouforever

Geneticist is the one word place holder of the day…

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Sleeping off the Synagis shot

January 15, 2016 by mamawillloveyouforever

Marsh had a follow up with the pediatrician today and a “surprise” shot. Poor guy Tylenol and lots of cuddles with mama are rounding out the remainder of “Heartsurgerversary” Day…

Posted in May you never see what I have seen | Leave a comment

Round 1 Open Heart Surgery

January 15, 2016 by mamawillloveyouforever

Was 2 years ago today… So thankful…the memories though… :-….)

Posted in May you never see what I have seen | Leave a comment

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I want to tell the world how much I love you because I don’t know how much time we’ll have heart to heart

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Think of the number of lives we could help if we could.

When I don't know what to do, I defer to people with greater knowledge, greater wisdom, greater experience, and greater perspective.
And Marshall's health is no exception.
The difference between life and death for hundreds of babies, like Marshall, born with special hearts, comes down to a lot of things. But in the process of securing the help Marshall needed, I found it often came down to knowledge, money, resources, and access to information.
We're working as hard as we can to gather all of the above. And sometimes that just isn't enough.
You may check out the fundraising website some truly incredible people set up for our family by going here
Any donations we receive will be designated solely for the purpose of ensuring Marshall gets the best care we can offer during our time with him. Though I hope that time is long, there are no guarantees. But one thing is certain: every dollar we raise (beyond covering Marshall's medical and travel expenses) will be used to establish a foundation dedicated to helping other families as they manage their child's congenital heart disease and congenital heart defects.
An anonymous donor once offered to match every dollar in donations up to $10,000. For his or her support, help, and prayers there are not words enough to ever repay our debt.
Think of the number of lives we could help if we could.
Please help if you can.

With Supreme Gratitude, Our Family Offers Our Thanks to:

Dr K Nurse T Sonographer E Dr. E Dr. S Sonographer C Dr  No Dr  N Dr Friedman The Entire Staff at Boston Children's Hospital Shay Sonographer B NBT Bank Sea Waves Technology Stomping Grounds Art: Books: Gifts Kim at my former insurance The great folks at Blue Cross Blue Shield The Wild Boys Penny Erin Bob and Linda The Baker Family Tammy Roberta Cindy Martha Donna Jim, Rob, & Dan Cassie Martha Rob Patty Pam Sarah Terri The Day Family The O'Connors The Bennett Family Ruth James, Beth, & Lily Micah Jenn Julie Paul Fay Erica Jesi Susan B Sharon Kathy Karen Carin Monica Nichelle Sue M Mary Barbara The Ellis Family The Le Family The Sabino Family Mang Insurance Ryan Mangrum The Class of '97 Laura Rachel Eric Wcom Wendy CompassionNet Alicia Jan Gilligan's Frontier Dollar General Big M Service Pharmacy

Everyone who shared Marshall's links

Everyone who read Marshall's blogs

..and many more!

“It is not the critic who counts; not the man who points out how the strong man stumbles, or where the doer of deeds could have done them better. The credit belongs to the man who is actually in the arena, whose face is marred by dust and sweat and blood; who strives valiantly; who errs, who comes short again and again, because there is no effort without error and shortcoming; but who does actually strive to do the deeds; who knows great enthusiasms, the great devotions; who spends himself in a worthy cause; who at the best knows in the end the triumph of high achievement, and who at the worst, if he fails, at least fails while daring greatly, so that his place shall never be with those cold and timid souls who neither know victory nor defeat.” Theodore Roosevelt

“I believe in miracles, how ’bout you?”

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