It’s a gray day in Boston. Marshall’s kicking the viral gunk. Yeah!! His blood work is ok, all things considered. His GI system is a bit of a wreck. My instincts believe that the GI stuff is an adverse effect to one of the main meds Marshall takes. He has had wacky (and scary) diaper […]
Marshall’s experiencing some (terrifying) GI issues, there’s some not so great heart stuff going on, and he still has this viral gunk. Please send our baby some really BIG, very strong thoughts. Please.
Marshall caught viral gunk from his brothers. That’s the bad news. The good news is he flew through the milrinone wean. It’s effects last 5-10 days once it stops per one of the transplant & heart failure doctors. So he isn’t out of the woods. But he has found a clearing. It is likely he […]
Time for me to vent. I try not to do that before an audience but I’ve soooooooo had enough. I will preface this by saying the important stuff: #1: I am really, truly, incredibly thankful that the world’s best have turned Marshall’s health around. Without them, our little miracle wouldn’t stand a chance. And he […]
We have new worries. But we have a plan. And since we all love this little boy sleeping peacefully as I unwind my worry into this poor laptop, it’s long overdue that I let you in on both. Please forgive me. This is soooooooo much. Since I have yet to discuss the details with Marshall’s […]
I held Marshall once since he came to the ICU thanks to the brain ekg cap. That came off today. Annnnd I am FINALLY ROCKING, DANCING, CUDDLING, AND HOLDING our boy 🙂 CT today to check for post stroke issues Mri series Tuesday Holding my breath in the meantime… And so thankful.
Marshall’s first night in the ICU with his Milrinone went fairly well. He is thankfully happy and smiling this a.m. And it looks like we’ll be stepping down to the floor once they are ready for him. He will have a CT scan midday so that surgeons can get a better look at […]
With Marshall not feeling well, I spend much of my time dancing and rocking and bouncing to keep him comfortable. So I am generally too exhausted to write. Please forgive me. For now the team is trying meds then bigger meds if these don’t work. More tests on Monday. His case will be presented at […]
Sooooo Marshall’s cath was full of all kinds of things to make it more interesting. Highlights (?) included our late arrival (oops on me for savoring more time with Marshall), difficulties in even placing the cath, a wait for the book incident I will call “A Fellow Blood Spray,” a question of whether to place […]
My mom gave me the “You need to update Marshall’s blog more!” talk yesterday. In my defense, I have a lot going on in my life with four wild ones, marriage, work, and life. Throw in a baby too big to hold with just one arm, a couple of technical glitches, and going through a […]
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