I passed my baby off eight hours ago. I tried not to cry. The only experience I can equate the.feeling of passing Marshall off to OR Nurse J, an anesthesiologist, and a doc is it is a step above holding my dog at the vet on her last day with me. My. God. This. Is. […]
Dr Friedman stopped by following the medical – surgical meeting this morning. For the first time since Marshall first fell heart sick in May, the team is in absolute agreement. It’s unanimous. Going forward now is in his best interest. Apparently the team devoted more discussion to how they helped Marshall get well enough to […]
Celebrating early today with a nap because of this afternoon’s events… Yesterday’s cath knocked a lot out of Marshall and all he really has been doing is sleeping and eating. Which is good. My hope is he is laying here in my arms gathering his strength. Please keep our EIGHT month old baby and his […]
Marshall’s cardiologist appointment with Dr. S went well. “I love you. You look great.” (direct quote.) That kind of medicine does the heart good. But it Dr S’ other words that are still echoing in my head. I would give nearly anything for Marshall to be well enough to postpone leaving his brothers and heading […]
Friedman. Confirmed. Marshall is getting readmitted to Boston Children’s on Sunday for a cath Monday. I am going to have a big cry. And then pack… Please keep the wild boys – especially the youngest – in your thoughts. And prayers if that’s what you believe… And if possible send whatever positivity you can spare…
My technology break ended this morning. And when that break ended, my coffee and I shared some tears. As Facebook informed me of its typical “news,” I found both tragedy and hope. I am a writer at heart. It takes a lot to render me wordless. So I sobbed as I read Noah (of Noah’s […]
Tomorrow marks the one year anniversary of when we found out Marshall was a boy. And when we found out about Marshall’s extraordinary heart. Just remembering that day brings me to tears. To say this week has been easy would be a total, absolute lie. To say the weeks since we were freed from “Hotel […]
We left three hours later than we had planned and are Massachusetts bound. Trust me, I am in no rush whatsoever to go back there. In fact, it seems like we just left. The threat of Marshall being re-admitted isn’t helping the way that I am feeling right now. Each and every goodbye with the […]
Noah (of Noah’s Hope for Heterotaxy) is off of ECMO per the latest update I found 🙂 PLEASE SEND SOME BIG, STRONG THOUGHTS & PRAYERS HIS WAY. And while you are at it, send some for Marshall too please. He has follow up appointments this week with his local teams. Many, many thanks!
Look who is surprising his big brothers in the morning! Shhhh….lets make this the best kept internet “secret” of all time 😉
themiracleofmarshall 