Marshall had his appointment with his pediatrician today and everything seems great! Plus he had the chance to flirt with some of his favorite ladies. :-). Marshall’s pediatrician did find some fluid in his ear. Perhaps this is the reason for his post-op fever?? If it was something as simple as a teething related ear […]
The results of today’s appointment: Marshall “looks great” (direct quote from Dr Smith). The echo showed the heart function has improved. Dr Smith placed it on the mild to moderate side versus where it had been…despite “never having seen anything like this” Dr Smith had decreased the lasix level and would like to see how […]
There were no surprises other than Marshall woke up when the sedation shpuld have taken hold. There were a couple of concerns regarding where the veins return (something they will monitor closely) and the function (which hasn’t changed much). But everything looks good. If the team can optimize his meds, we could be on our […]
Marshall’s echo is in 45 minutes. Send big thoughts/prayers/whatever you can spare to our little fighting miracle. Every bit helps so much. As for how he is doing, he is grumpy today (which is nothing unusual since his body needs time to adjust to the new circulation). This morning he had the last of the […]
Dr. Friedman stopped by yesterday after Marshall kicked his atrial lines and moved over to the floor. Even Dr. Friedman agreed “Marshall is progressing so well.” Yesterday he made lots of progress despite being quite irritable and out of it. He lost his chest drains, then had chest xrays (which looked good), they lowered the […]
A group of incredible people joined forces to host a benefit to support Marshall “The Miracle” Sepello. I don’t even know where to begin to thank them. Every kindness means the world to all of us on this rollercoaster ride as we help Marshall wage his war against congenital heart disease and heterotaxy. I would […]
Marshall is slowly being weaned from the sedation. I stepped out for a (really late) brunch and came back to Marshall in what the nurses call a “Welcome sleeve.” Seems he was up to his mischievous ways in the 1/2 hour I was out and was pulling at his vent and n.g. tube. I believe […]
Marshall is shedding fluid like a champ. And the team has begun the process of getting rid of things. They took him off dopamine. They took away the pacer. His saturations are great. His pressures are great. They also slightly decreased the oxygen in his vent. And there is mention of getting his chest closed […]
Marshall is in the same bed space (#23) as he was after his first surgery. If no one had told me he was him, I am not sure I would even recognize him as my own. To say the baby we saw last night looks like Frankenbaby isn’t intended to be rude. It is the […]
Marshall made it out of the O.R. and just got to the ICU That’s all we know. We are still waiting for Dr Baird.
themiracleofmarshall 