Best Birthday Gifts Ever: These Wild Boys & Sunshine
And I got one H-E-Double-Hockey-Sticks of a birthday surprise…
Category Archives: Hope
January
Marshall’s heart check up went well. The gradient is 5.5 and everything (including function) looks the same!! Seth has a slight murmur but his heart is fine. Dr S wants to see Marshall back in JANUARY 🙂 THANK YOU SO MUCH FOR THE GOOD THOUGHTS ❤
One. Incredible. Year.
It has been 365 days since I held Marshall and Michael & I walked as far as we could with him to the OR. Then with a lump in my throat and lead in my chest, we handed him off for his Bilateral Bidirectional Glenn. Then I cried. And some warm lady in a lab […]
Please please send STRONG thoughts and prayers
After all of the good thoughts and prayers you have sent for Marshall, I know I don’t really have the right to ask for more. But I can’t not. I learned early this morning that dear family friends are in the midst of the unexpected: a member of their family is in a very severe, […]
Meeting of the hearts
Marshall and I finally had the opportunity to meet Noah’s mom, Amber, his big sister, Morgan, and his set-to-arrive-within-9-weeks little sister, Harper. We all had a wonderful dining experience complete with Marshall showing off his impeccable toddler skills in a crowded restaurant ;-). And Marshall and I finally had the chance to give our thanks […]
We DON’T HAVE TO SEE CARDIOLOGY TEAM FOR THREE MONTHS!!!!
I have to start off by saying: THANKYOUTHANKYOUTHANKYOUTHANKYOUTHANKYOUTHANKYOUTHANKS ALL OF THOSE GOOD THOUGHTS AND BIG PRAYERS ARE WORKING!! Today’s cardiologist appointment was full of good news. Marshall gained 1.5 lbs and grew 1.5 inches in the past two months. The echo went well. The gradient measurement is the same. His heart function has improved a […]
Cardiologist today
We are off to take Marshall to see Dr S and the hometown team. Please send some good thoughts for Marshall if you can. This is his first appointment in months and to be honest, I am a little worried. … but that’s just a regular part of parenting 4 boys. From the outside, Marshall […]
It has been one year
Last Memorial Day weekend as people were kicking off summer with family gatherings, picnics, and parades Marshall got really sick. It’s easy to remember how dangerously ill he was and very hard to forget what followed with all that happened last summer… For one so small, Marshall he has been through so, so, so much. […]
Thriving!!
Cardiologist appointment went GREAT! HE DOESNT WANT TO SEE US AGAIN UNTIL JULY!! Gradient changed a little but only because Marshall weighs in at a record breaking 20 lbs 6 oz!! Oooh and he grew 1/2 an inch 🙂 Marshall’s heart function has improved slightly too. A few meds changes and we’re off for lunch […]
Cardiologist Appointment
Marshall sees Dr S today…for the first time in over one month! There’s this part of me that is excitedly relieved to have such time between appointments. Then there’s this part of me that is terrible concerned. It was this time last year when Marshall got so, so, so sick. And then he missed his […]
themiracleofmarshall 