Dr Luis joined us this evening. They are closing tomorrow hopefully around 10 a.m. (though they have another procedure before Marshall.) And our little man is coming around. He is opening his eyes. And wiggling his head. And attempting to move his neck. And moved his foot when I tickled his toes. And he is […]
Marshall has been on a “paralytic holiday” for 12 hours. This a.m. during our visit he moved when I touched him. And I got to rub his forehead & touch his itty bitty swollen foot. Then they gave him more paralytic which will only last one hour but is necessary to keep him and his […]
Marshall is officially one week old. I could only rub his head and tell him how much I love him to celebrate. This is lousy. There is nothing at all that I can do for him. And I’m his mama. But it could be so much worse. Marshall is “stable” still. His team would like […]
The past week has been a blur of frenetic activity. Confession: I have so much to do and so much on my mind that I don’t want to do anything. But I must. With a life changing event just days away and as the mom of soon to be four sons, there’s a lot […]
According to my calculations, this is Marshall’s “First” Christmas. Especially since a few people have already given him gifts. And just for the record, the”thumpety thump thump” wasn’t Frosty. It was Marshall kicking around after a long, long day. I waited up ’til midnight to be the first to say:
I’ve accepted it: I can’t move. Baby stepping is an understatement. Yesterday’s fetal echocardiogram took every bit of energy I had completely out of me. And caused my body back to hurt in ways I didn’t know were possible. To the point that two men had to pull me up from the table. And I […]
Dr. S took the time to call me while he was “on vacation” (which, in his words, means he is “just trying to get some work done.”) After giving him a run down of Dr. F’s findings, he thanked me for the lengths I’ve gone to in researching Marshall’s condition. He has a 22 month […]
This site went from 1 view daily to over 600 which means people are “listening.” And in all of that listening, I hope beyond hope by sharing Marshall’s story, we all can be inspired in some way. Every. Kindness. Counts.
Boston was exhausting. I lost count after the fourth hour of ultrasounds. The good news is Marshall has hair. And we watched him blink his eyes. And it seems our baby, though absolutely beautiful, is basically (in the simplest of terms) a genetic mutant with a very rare, very severe series of heart defects. […]
themiracleofmarshall 