It’s a victory for our little miracle…so far. I’m pretty sure Round 2 of Marshall’s open heart surgery will be sooner than not. His oxygen saturations have been all over the place the past few days. And I’m confident it’s not the pulse oximeter. I’ve already been in touch with Boston so we know […]
Both when I heard Mark’s story from his mama, Maggie, the night before they left Boston and when I read it here just now… I’m saving the story of meeting Maggie for Marshall’s book. You see, Mark’s heart is nearly the same as Marshall’s. And we met him on the floor of 8 East. Thinking […]
Marshall’s fund has now crept up to nearly $3,000. Which means it’s time for us to decide how to best invest the donations to in turn be able to establish long term success in helping other families as they go through similar experiences. Honestly, I can’t thank you all enough ❤
Before we left Boston, Marshall got a shot of Synagis to supposedly prevent the very illness stealing his strength and his breath as I type. NO ONE told me he would need a dose of this shot monthly. Luckily I just found this out on my own… As with any upper or lower respiratory issue, […]
Today has been rough for our little man. He stepped down to the chaos of 8 East. He has a pic line, a pair of leads, and a small chest drain. He gained I.V. fluids and is again N.P.O. His team discovered some air in his abdomen. Dr. Baird, Dr. Luis, Dr. Friedman, Dr. C, […]
I noticed Marshall’s chest drain was full of gunk yesterday while he was with THAT nurse. THAT nurse is the one who made him cey EVERY SINGLE TIME she touched him. The good news is most hospitals are full of THAT nurse and you are lucky to get a good one. Not here. This place […]
Nurse practitioner just stopped. Marshall graduates from the CICU to the floor ( step down) TOMORROW! !!
Marshall’s chest drain is leaking some scary stuff. It will be a couple of hours until we know for sure what it is. Lets hope my gut is wrong. Send big, good thoughts to our boy & pray harder please And in the meantime, I’m just going to sit here and hold him.
From blowing my lid and throwing down on Marshall’s nurse. I dont believe in violence but rest assured, I outweigh her by at least 20 lbs. Marshall is seriously struggling with this #! $@ vent tube that should have been removed by now. I have video footage of him fighting with it to the point […]
themiracleofmarshall 