Marshall had his well baby appointment today. He is doing so well his growth has jumped to higher curves on the growth charts in terms of his weight, head circumference, & length! And he was brave during his shots (from what I overheard through plugged ears at the reception desk.) Fortunately Michael stayed with him […]
For starters, I have to tell you that I know Round 2 is inevitable. But I can’t imagine Marshall going through that again. So when Boston called to let us know when Round 2 would be, I wasn’t really prepared. As a parent, nothing truly prepares you for your child’s illness, injury, surgery, or any […]
I need a few hours to digest… It will be in mid July. Breathe, Rebecca…
Last night I noticed three of the four wild boys have a rash. And one ginger boy has been very tired and very grumpy this week. A part of me thought (ok hopedlikeheck) it was just the heat. It wasn’t. This morning I made arrangements for the big wild boys to be evaluated by the […]
Recent developments with our hometown cardiologists have brought to our attention the necessity of having Marshall evaluated by the Boston team. I will spare the details for now and include them in Marshall’s book. In the simplest of terms, it makes more sense to have the people who are supposed to do the second surgery […]
After reading about Round 2, and given the confusion regarding the layout & placement of Marshall’s internal organs, I am now doubting if they are 100% sure he has a single left ventricle… just for the record
And Marshall isn’t much of a fan of these warm temperatures. Luckily, he is not as cranky as he could be since I have not had previous experience mothering one so small in summer months. Plus our little miracle is dealing with much, much more than most. His oxygen saturations were wacky last week. I […]
Well, on the list of bad things, this is a minor offense. I entirely hung up on the lady at [an organization I can’t mention because they’re way bigger than me…wait for the book]. This morning I called to request Marshall get evaluated as per our Boston discharge instructions. And per his pediatrician’s prescription for […]
When Harvard’s best says this, a woman like me has no choice but to listen. And share the news: Nurse Practitioner K ended our call last night with those parting words. Plus, look at Marshall’s face 🙂 Sooooo the good news is there is no bad news to report. After our hometown cardiologist appt yesterday, […]
So far, so good! We go back in three months unless something changes after doc has conference Tuesday. We were instructed to get in touch with the Boston team to begin planning Round 2…
themiracleofmarshall 